I am human. Though I strive to live a positive, beautiful life even with chronic illness, at times I grow weary of always being sick, discouraged by the pain, drained from the fatigue, and down in the dumps because of my general health situation, from an overall standpoint. I get frustrated waiting for my “someday.” … Continue reading
Tag Archives: Autoimmune Illness
Don’t Bench Yourself: An Inspiring Juvenile Arthritis Story by Ashley Boynes-Shuck
Today, I spoke at an Arthritis Foundation Juvenile Arthritis Family Day event in my area. I wanted to share the text of my speech with you all below. I will have videos and photos at a later time, to share on my arthritis Facebook page. Enjoy, and feel free to leave a comment letting me know … Continue reading
Inspiration or Isolation: Which Path Will You Choose? – by Ashley Boynes-Shuck
In the world of chronic illness, there are many things about which we simply do not have a choice. I didn’t choose rheumatoid arthritis, or osteoarthritis, or celiac disease, lupus, sjogrens syndrome, chiari, and so on. Likewise, I’m sure that you did not choose whichever illnesses or disabilities that you may live with. As I’ve … Continue reading
Walking on Eggshells When Someone You Love Has Chronic Illness or Disability – by Ashley Boynes-Shuck
Sometimes, when someone lives with chronic illness, chronic pain, or a disability such as arthritis, lupus, or other rheumatic illnesses, the “normal” or “healthy” people around them feel the need to “walk on eggshells.” What better time than now, as Easter is upon us, to discuss this very topic? I, for one, have always wanted … Continue reading
Fatigue vs. Being Tired: What’s the Difference? – by Ashley Boynes-Shuck
To put it simply: being tired is NOT the same thing as having fatigue. The type of fatigue that comes along with chronic illness and autoimmune diseases is unlike any other kind of exhaustion that most healthy people will experience in their lives. As an “e-patient” and an online advocate for people with rheumatic and … Continue reading
Lupus for Christmas – by Ashley Boynes-Shuck
I got Lupus for Christmas. And Sjögrens Syndrome, too. They were wrapped up in a nice little package to go with my Rheumatoid Arthritis and Celiac Disease, and tied up with an imaginary bow. I didn’t get coal in my stocking, but I got the motherlode of autoimmune illness, delivered not by Santa, but by my … Continue reading
Neurological Involvement in Rheumatoid Arthritis and Lupus – by Ashley Boynes-Shuck
Did you know that autoimmune diseases such as rheumatoid arthritis and lupus, among others, carry with them the risk for neurological symptoms or comorbidities? It’s true. Sometimes these types of chronic illnesses can LITERALLY be in your head … and the rest of the body, too. Both Lupus and Rheumatoid (Autoimmune) Arthritis can have Neurological … Continue reading
A Modge-Podge of Arthritis News and Tidbits! – by Ashley Boynes-Shuck
Today has brought a lot of news and “tidbits” about arthritis and other forms of rheumatic disease. Some of it is brand-new, other news is older … but still worth sharing. Here are some recent stories to be made aware of, as of today … A CBS article reveals that running doesn’t always lead to, … Continue reading
What Story Does Your Face Tell? – by Ashley Boynes-Shuck
Arthritis Month has come to an end, but just because June is here, doesn’t mean we shouldn’t keep on spreading arthritis awareness. During the month of May, I saw and heard a lot from the Arthritis Foundation’s “Faces of Arthritis” campaign — a wonderful, and sometimes eye-opening, initiative. I thought long and hard about the Face of Arthritis, and … Continue reading
13 Arthritis Tips and Resolutions for the New Year – by Ashley Boynes-Shuck
Happy New Year! Let’s resolve to make 2013 a healthy year with these 13 tips for living well with arthritis and rheumatic illness. Exercise: We know you hear it all the time, and we know that it can be frustrating and seem like a huge challenge, but light to moderate exercise, or any kind of … Continue reading
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