I’ve shared ways to advocate in the past, but there’s no time like the present to get involved if you haven’t already. You may or not be aware of this but Congress has appointed a “Super Committee” to find ways to reduce government spending. This is an important task, yet we as patients and advocates … Continue reading
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World Arthritis Day 2011 – Do Blue & Move to Improve! (…And some words from Oprah Winfrey & Dr. Phil, too!) – by Ashley Boynes-Shuck
Today, October 12th, 2011, is World Arthritis Day. This year’s theme is “Move to Improve” — and that’s exactly what we want YOU to do! We would like you to move around the world for arthritis awareness. By October 31st, the Arthritis Foundation by choosing your weapon against arthritis pain. The goal is covering the distance … Continue reading
Advocacy / Arthritis / Arthritis Foundation / Awareness / Juvenile Arthritis / Personal Stories / Types of Arthritis / Uncategorized
“Ashley Goes to Washington!” – Advocating for Arthritis: You Can Do It Too! – by Ashley Boynes-Shuck
Recently, I took part in the American College of Rheumatology ACR Advocates conference in Washington, D.C. In the past, I’d done a lot of Arthritis Foundation e-advocacy events online, but this time when I was asked to speak to Congress and advocate for arthritis, I simply couldn’t pass it up. So, with my mom as … Continue reading
Advocacy / Arthritis / Ashley's Health Diary / Awareness / Juvenile Arthritis / Personal Stories / Types of Arthritis / Uncategorized / Wellness
Autoimmune Overlap Syndrome – Yes, There IS Such a Thing! – by Ashley Boynes
I recently was told that I have “autoimmune overlap syndrome.” This is exactly what it sounds like. Whereas most people have 1 or 2 autoimmune conditions, I, like many other “spoonies” out there, have been dealt a whole slew of them. Basically, what this is, is when you have one “primary” condition and a few … Continue reading
Drug-Induced Lupus – What Is It, and Who Can Get It? – by Ashley Boynes
Recently, I was told that I likely have a form of lupus called “drug induced lupus” or DIL for short. If you had asked me a couple of months ago, I would have had no idea that this existed – but it unfortunately does. I knew about discoid lupus, which mostly affects the skin, and … Continue reading
Advocacy / Arthritis / Arthritis Foundation / Awareness / Juvenile Arthritis / Uncategorized / Wellness
The Very Merry Month of May: Arthritis & Lupus Awareness – by Ashley Boynes
May is both Arthritis Awareness and Lupus Awareness Month in the United States. Let’s take advantage of this fact in order to spread the word and to educate others about these conditions. Stumped on how to spread awareness? Increasing education and visibility are key. By improving upon these areas, we can further spread awareness, which … Continue reading
Advocacy / Arthritis / Arthritis Foundation / Ashley's Health Diary / Awareness / Juvenile Arthritis / Personal Stories / Uncategorized / Wellness
“What I Know For Sure” – Chronic Illness Edition … by Ashley Boynes – inspired by Oprah Winfrey
Oprah has taught me a lot of things. She’s one of my idols, and, to me, a prime example of “overcoming” in the face of adversity to truly live your life to its fullest potential. After writing in since high school (I graduated in 2002) and being on a ticket waiting list for over 2 … Continue reading
Cozy Up but Keep On Moving: Tips for Staying Active in the Winter Months – by Ashley Boynes
For many across the country, the winter months mean colder weather. It is easy for anyone to use snow, rain, chilly air, or freezing temperatures as an excuse for becoming depressed and inactive during the winter season. It is REALLY easy for those of us with arthritis to do so. However, we must learn to … Continue reading
Broken Dolls: The Things and People We Keep, Flaws and All ~ by Ashley Boynes
I’m not a hoarder. I do keep things, though, that are of great sentimental value. One of these many “things” is, to me, not just a “thing” but a very real part of my life. Her name is Winnie. She is a 27-year-old Cabbage Patch Kid doll. She is dirty. Her hair is braided in … Continue reading
World Arthritis Day, Online Support, and My Wild Ride to Wellness! – Arthritis Ashley’s Health Diary – Entry #24
October 12th, 2010 ARTHRITIS, GASTRITIS, IRITIS, OH MY! Hello, dear readers! In honor of my blog moving to the “Wellness with a Side of Life, Please” page, I’ve revamped and decided to call my journey, “Arthritis Ashley’s Health Diary” – but, it’s still me on my journey to wellness and optimal health – and we’re … Continue reading
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