*Disclaimer: Before I begin, let’s get the requisite disclaimer out of the way: this piece has been entered in the Patients Have Power Writing Contest run by Clara Health. It is designed to raise awareness about clinical trials. That said, I’m nonetheless still passionate about this cause, and am personally interested in everything that this … Continue reading
Category Archives: Advocacy
How RA Impacts Relationships and Self-Love: A Pfizer Facebook Live Chat with Arthritis Ashley & Dr. Logan Levkoff
Thank you to Pfizer for having Dr. Logan Levkoff and me on to discuss Relationships & Rheumatoid Arthritis. Filmed live at Pfizer Studios in New York City, we discussed how RA can affect relationships with our partners, our families, and, even our relationship with our selves. Check out the video on the Pfizer Facebook page, … Continue reading
Pfizer & Arthritis Ashley Facebook Live: May 29
Tomorrow (Tuesday, May 29th, 2018) at 11:45am EST, I will join Pfizer and nationally-recognized relationship expert Logan Levkoff, Ph.D, to discuss how rheumatoid arthritis (RA) impacts life, relationships, and self-esteem. We will also be introducing a fun “RA Fishbowl” exercise which can help you talk to your spouse, partner, family, friends, neighbors, and colleagues about living with … Continue reading
TheRAconnection.com — Join Today!
I’ve recently began blogging with The RA Connection, as well as doing some admin and community management work with this wonderful site. I urge you all to join if you have RA, PsA, OA, Lupus, or AS. It is free, safe, secure, and easy to use — a great place for Community, Content, and Connection … Continue reading
Is it Juvenile Arthritis … or Farber Disease?
It’s Arthritis Awareness Month (yay!) … so I want to bring awareness to a very rare disease that often mimics Juvenile Idiopathic Arthritis. This illness is called Farber Disease (a.k.a. Farber’s Disease, Farber’s lipogranulomatosis, ceramidase deficiency, Fibrocytic dysmucopolysaccharidosis, and Lipogranulomatosis.) Currently there are only 80 diagnosed, confirmed cases of Farber Disease worldwide! However, there may be … Continue reading
Feeling Adult-ish After My Total Knee Replacement
There was a song that was popular when I was in high school called “What’s My Age Again?” by Blink 182. I’ve always related to that question: what IS my age? It’s mostly because of my rheumatoid arthritis. First off, there’s always been an issue with my actual diagnosis: yes, it WAS “juvenile” rheumatoid arthritis, … Continue reading
The Imperfection of Appropriate Language: Discussing Disability is Difficult
I want to first start off by apologizing to anyone I may have offended in my recent article for A Woman’s Health Magazine (online version) and Women magazine (print version) entitled: For Some With Rheumatoid Arthritis, Beauty Really is Pain. I enjoyed writing this article and was very proud of it, until someone wrote me … Continue reading
Your Story Counts: Help Further Autoimmune Disease Research Today
Autoimmune diseases can be serious, and the following video includes just some of the faces of the millions of people who live with these often-invisible illnesses. Today is #WorldArthritisDay. I personally live with just one of many autoimmune forms of arthritis. But did you know that arthritis, and joint & muscle pain, are also common … Continue reading
When Stars Get Sick: Glamorizing Illness or Bringing Awareness?
It never fails to amaze me how fired up people on the Internet get about celebrities. Like, okay … I’ve been guilty of it to an extent. I’m an admitted fangirl. I’m proudly in the “fandoms” of Britney Spears, Lady Gaga, Justin Timberlake, Taylor Swift, Beyonce, Ed Sheeran, and Oprah. I’m a Grey’s Anatomy lifer. … Continue reading
“What RA Looks Like” – by Healthline
What Rheumatoid Arthritis Looks Like In August, Healthline.com sent a film crew to my home in Pittsburgh. They followed me around for 8 hours to see what a typical day is like for me as a patient with RA. (Of course, we all know that there is no “typical” day. That day, I was able … Continue reading