*Disclaimer: Before I begin, let’s get the requisite disclaimer out of the way: this piece has been entered in the Patients Have Power Writing Contest run by Clara Health. It is designed to raise awareness about clinical trials. That said, I’m nonetheless still passionate about this cause, and am personally interested in everything that this … Continue reading
Category Archives: Juvenile Arthritis
Cupping, Gua Sha, and Acupuncture: Can They Help with Arthritis and Chronic Pain?
Most of you know that I am a big fan of integrative medicine: a mix of natural or alternative methodologies and traditional pharmaceutical treatments. In fact, one of the first “real” published articles I wrote was in a local magazine (called South Fayette & Neighbors, now known as IN South Fayette,) in 2006, and it … Continue reading
Feeling Adult-ish After My Total Knee Replacement
There was a song that was popular when I was in high school called “What’s My Age Again?” by Blink 182. I’ve always related to that question: what IS my age? It’s mostly because of my rheumatoid arthritis. First off, there’s always been an issue with my actual diagnosis: yes, it WAS “juvenile” rheumatoid arthritis, … Continue reading
#RealTalkRA Summit: Pharma, Fun, and Friends
This week, I was invited by Pfizer to attend the 2017 Real Talk Summit in New York City. While they did compensate me for my time and took care of accommodations, I’m going to go ahead and disclaim now that they are NOT paying me for this blog post, and did NOT ask *or* … Continue reading
My Joints Are 90 Years Old, But That’s OK
✨✨ Long post, but I promise it has a point. Please read to the end! (And please excuse typos.) ✨✨ In the past year, I have been told by orthopedic surgeons that my right knee looks like an 80-year-old’s. I was told that my right foot and ankle look like a 90-year-old. And yesterday, that my … Continue reading
No, Lady Gaga Did NOT Confirm That She Has Rheumatoid Arthritis
A post has gone viral in recent days, feverishly declaring that “Lady Gaga Has RA!” “Lady Gaga Reveals She Has Rheumatoid Arthritis” and “Pop Star Lady Gaga Opens Up About Life With Rheumatoid Arthritis.” Except … she never specifically revealed that she has it. I admit that I was guilty of initially, (hesitantly) sharing it with a … Continue reading
Body Shaming + When Illness or Disability Affect Body Image, Fashion, and Beauty
Body-shaming is sadly a very real phenomenon. I mean, just look at the awesome and mega-fit Lady Gaga (who I LOVE, by the way!) who was shamed and trolled over a practically-nonexistent “belly roll” during the Super Bowl. It almost became a bigger topic of conversation than her stellar, iconic, and historically-great Super Bowl Halftime Show. … Continue reading
Walking in My Shoes: Keeping Perspective With a Chronic Health Issue
Today I decided to post a photo to my blog that I had posted on Facebook and Instagram back in November, 2016. Since I finally have my custom medial-unloader knee brace and my custom permanent Arizona cast for my foot, I decided that this particular post would be worthy of a re-share, and you will see … Continue reading
All About the Autoimmune Registry
Guys, I’m really excited to be working with a great new 501c3 nonprofit called The Autoimmune Registry. We are in the process of creating a hub for research, statistics, and patient data on all autoimmune illnesses. We also aim to establish prevalence of these disease, as right now the estimates for autoimmune disease prevalence are all … Continue reading
#HAWMC – Day 10: An RA Q&A
Questions and answers about life with rheumatoid arthritis and invisible illness. Continue reading