#PatientsHavePower: The Gift of Breakthrough Research and Clinical Trials
Advocacy / Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Autoimmune / Awareness / chronic illness / Disability / Fibromyalgia / invisible illness / Juvenile Arthritis / Lupus / pain / Personal Stories / RA awareness / rheum awareness / rheumatoid arthritis awareness / SLE / social media / sponsored / Types of Arthritis / Uncategorized / Wellness

#PatientsHavePower: The Gift of Breakthrough Research and Clinical Trials

*Disclaimer: Before I begin, let’s get the requisite disclaimer out of the way: this piece has been entered in the Patients Have Power Writing Contest run by Clara Health. It is designed to raise awareness about clinical trials. That said, I’m nonetheless still passionate about this cause, and am personally interested in everything that this … Continue reading

Cupping, Gua Sha, and Acupuncture: Can They Help with Arthritis and Chronic Pain?
Arthritis / Arthritis Ashley / arthritis awareness / invisible illness / Juvenile Arthritis / Lupus / pain / Personal Stories / RA awareness / rheum awareness / rheumatoid arthritis awareness / Types of Arthritis / Uncategorized / Wellness

Cupping, Gua Sha, and Acupuncture: Can They Help with Arthritis and Chronic Pain?

Most of you know that I am a big fan of integrative medicine: a mix of natural or alternative methodologies and traditional pharmaceutical treatments. In fact, one of the first “real” published articles I wrote was in a local magazine (called South Fayette & Neighbors, now known as IN South Fayette,) in 2006, and it … Continue reading

TheRAconnection.com — Join Today!
Advocacy / Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Autoimmune / chronic illness / Disability / Personal Stories / RA awareness / rheum awareness / rheumatoid arthritis awareness / sponsored / Types of Arthritis / Uncategorized / Wellness

TheRAconnection.com — Join Today!

I’ve recently began blogging with The RA Connection, as well as doing some admin and community management work with this wonderful site. I urge you all to join if you have RA, PsA, OA, Lupus, or AS. It is free, safe, secure, and easy to use — a great place for Community, Content, and Connection … Continue reading

Is it Juvenile Arthritis … or Farber Disease?
Advocacy / Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Autoimmune / Awareness / chronic illness / pain / rheum awareness / sponsored / Types of Arthritis / Uncategorized / Wellness

Is it Juvenile Arthritis … or Farber Disease?

It’s Arthritis Awareness Month (yay!) … so I want to bring awareness to a very rare disease that often mimics Juvenile Idiopathic Arthritis. This illness is called Farber Disease (a.k.a. Farber’s Disease, Farber’s lipogranulomatosis, ceramidase deficiency, Fibrocytic dysmucopolysaccharidosis, and Lipogranulomatosis.) Currently there are only 80 diagnosed, confirmed cases of Farber Disease worldwide! However, there may be … Continue reading

Spryngs by Brevani: Elegant Arthritis-Friendly Rings for Swollen Fingers
Arthritis / Arthritis Ashley / arthritis awareness / Body Image / chronic illness / Entertainment / instagram / pain / Personal Stories / Pop Culture / RA awareness / rheum awareness / rheumatoid arthritis awareness / selfies / social media / sponsored / Uncategorized / Wellness

Spryngs by Brevani: Elegant Arthritis-Friendly Rings for Swollen Fingers

Spryngs by Brevani’s tagline is “elegance that fits comfortably for a lifetime.” I love that, because it encapsulates what this brand is all about. This upscale high-end fine jewelry line has finally come out with rings that have the arthritis patient in mind. Actually — their beautiful jewelry is well-suited to anyone whose ring size … Continue reading

Feeling Adult-ish After My Total Knee Replacement
Advocacy / Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Ashley's Health Diary / Autoimmune / Awareness / Body Image / chronic illness / Disability / Entertainment / invisible illness / Juvenile Arthritis / pain / Personal Stories / Pop Culture / RA awareness / rheum awareness / rheumatoid arthritis awareness / selfies / social media / Types of Arthritis / Uncategorized / Wellness

Feeling Adult-ish After My Total Knee Replacement

There was a song that was popular when I was in high school called “What’s My Age Again?” by Blink 182. I’ve always related to that question: what IS my age? It’s mostly because of my rheumatoid arthritis. First off, there’s always been an issue with my actual diagnosis: yes, it WAS “juvenile” rheumatoid arthritis, … Continue reading

When Stars Get Sick: Glamorizing Illness or Bringing Awareness?
Advocacy / Arthritis Ashley / Autoimmune / Awareness / Body Image / chronic illness / Entertainment / invisible illness / Lady Gaga / Lupus / Personal Stories / Pop Culture / rheum awareness / Selena Gomez / social media / Types of Arthritis / Uncategorized / Wellness

When Stars Get Sick: Glamorizing Illness or Bringing Awareness?

It never fails to amaze me how fired up people on the Internet get about celebrities. Like, okay … I’ve been guilty of it to an extent. I’m an admitted fangirl. I’m proudly in the “fandoms” of Britney Spears, Lady Gaga, Justin Timberlake, Taylor Swift, Beyonce, Ed Sheeran, and Oprah. I’m a Grey’s Anatomy lifer. … Continue reading

“What RA Looks Like” – by Healthline
Advocacy / Arthritis / Arthritis Ashley / Autoimmune / Awareness / Body Image / chronic illness / healthline / invisible illness / Personal Stories / RA awareness / rheum awareness / rheumatoid arthritis awareness / social media / Types of Arthritis / Uncategorized / Wellness

“What RA Looks Like” – by Healthline

What Rheumatoid Arthritis Looks Like In August, Healthline.com sent a film crew to my home in Pittsburgh. They followed me around for 8 hours to see what a typical day is like for me as a patient with RA. (Of course, we all know that there is no “typical” day. That day, I was able … Continue reading

#RealTalkRA Summit: Pharma, Fun, and Friends
Advocacy / Arthritis / Arthritis Ashley / arthritis awareness / Autoimmune / Awareness / Body Image / chronic illness / Juvenile Arthritis / Personal Stories / RA awareness / rheum awareness / social media / Uncategorized / Wellness

#RealTalkRA Summit: Pharma, Fun, and Friends

  This week, I was invited by Pfizer to attend the 2017 Real Talk Summit in New York City. While they did compensate me for my time and took care of accommodations, I’m going to go ahead and disclaim now that they are NOT paying me for this blog post, and did NOT ask *or* … Continue reading

X-Rays Don’t Lie
Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Body Image / Disability / invisible illness / pain / RA awareness / rheum awareness / rheumatoid arthritis awareness / Types of Arthritis / Uncategorized / Wellness

X-Rays Don’t Lie

I thought I’d share these as a follow-up to my “My Joints are 90 Years Old” post. I am having a total knee replacement of the right knee in a few weeks. I also need a right thumb joint replacement. My left wrist and right foot are beyond surgical repair. I’ve been told that my … Continue reading