Arthritis / Arthritis Foundation / Awareness / Juvenile Arthritis / Personal Stories / Types of Arthritis / Uncategorized / Wellness

Managing Time with Chronic Illness – by Ashley Boynes-Shuck

Sometimes, it’s hard to find time for things you want and need to do, while living with chronic illness. I get it. It’s difficult, and it’s even harder to explain to others. It’s been described in terms of spoons, and in many other ways, ranging from the creative to the absurd. That said, time management … Continue reading

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Inspiration or Isolation: Which Path Will You Choose? – by Ashley Boynes-Shuck

In the world of chronic illness, there are many things about which we simply do not have a choice. I didn’t choose rheumatoid arthritis, or osteoarthritis, or celiac disease, lupus, sjogrens syndrome, chiari, and so on. Likewise, I’m sure that you did not choose whichever illnesses or disabilities that you may live with. As I’ve … Continue reading

Advocacy / Arthritis / Arthritis Foundation / Awareness / Juvenile Arthritis / Types of Arthritis

May You Be Aware This Month: Advocating for Arthritis, Lupus, and More – by Ashley Boynes-Shuck

May is National Arthritis Awareness Month, and there are many ways that YOU can take action to spread arthritis awareness. Utilizing social media to spread the word is a great idea. So is signing petitions and supporting advocacy efforts like this Action Alert.  You could also sign up for an Arthritis Walk in your area, or … Continue reading

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Walking on Eggshells When Someone You Love Has Chronic Illness or Disability – by Ashley Boynes-Shuck

Sometimes, when someone lives with chronic illness, chronic pain, or a disability such as arthritis, lupus, or other rheumatic illnesses, the “normal” or “healthy” people around them feel the need to “walk on eggshells.” What better time than now, as Easter is upon us, to discuss this very topic? I, for one, have always wanted … Continue reading

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Fatigue vs. Being Tired: What’s the Difference? – by Ashley Boynes-Shuck

To put it simply: being tired is NOT the same thing as having fatigue. The type of fatigue that comes along with chronic illness and autoimmune diseases is unlike any other kind of exhaustion that most healthy people will experience in their lives. As an “e-patient” and an online advocate for people with rheumatic and … Continue reading

Advocacy / Arthritis / Arthritis Foundation / Awareness / Uncategorized

Difficult Decisions for Rheumatoid Arthritis Patients – by Ashley Boynes-Shuck

Being a rheumatoid arthritis patient or someone who lives with any chronic illness, really, leads us to sometimes have to make tough decisions that others may not have to face. Some of these decisions may be difficult or disheartening, and, like most life decisions, need to be considered carefully. One major decision that RA (and … Continue reading

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Neurological Involvement in Rheumatoid Arthritis and Lupus – by Ashley Boynes-Shuck

Did you know that autoimmune diseases such as rheumatoid arthritis and lupus, among others, carry with them the risk for neurological symptoms or comorbidities?  It’s true. Sometimes these types of chronic illnesses can LITERALLY be in your head … and the rest of the body, too.  Both Lupus and Rheumatoid (Autoimmune) Arthritis can have Neurological … Continue reading

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What Story Does Your Face Tell? – by Ashley Boynes-Shuck

Arthritis Month has come to an end, but just because June is here, doesn’t mean we shouldn’t keep on spreading arthritis awareness. During the month of May,  I saw and heard a lot from the Arthritis Foundation’s “Faces of Arthritis” campaign — a wonderful, and sometimes eye-opening, initiative. I thought long and hard about the Face of Arthritis, and … Continue reading

Arthritis / Awareness / Fibromyalgia / Juvenile Arthritis / Types of Arthritis / Uncategorized / Wellness

Autoimmune Illness and Circulation: How Do Conditions Like Rheumatoid Arthritis Affect Our Cardiovascular System? – By Ashley Boynes-Shuck

Most people think of aches and pains when they hear about arthritis, lupus, fibromyalgia, and similar ailments. The truth is, these conditions are complex, and there are still so many unknowns that surround each of them. Yes, pain and inflammation are often a huge part of various forms of arthritis and other chronic autoimmune illnesses, … Continue reading