Pay No Attention to the Man Behind the Curtain: Public Selfies & Private Illness
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Pay No Attention to the Man Behind the Curtain: Public Selfies & Private Illness

“Pay no attention to that man behind the curtain.”  It’s one of the most powerful lines from the movie and book, The Wizard of Oz. It’s such a simple quote — so relevant to the scene, that we usually don’t think of the symbolism that lies within it. it got me thinking, though, about “the … Continue reading

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Walking on Eggshells When Someone You Love Has Chronic Illness or Disability – by Ashley Boynes-Shuck

Sometimes, when someone lives with chronic illness, chronic pain, or a disability such as arthritis, lupus, or other rheumatic illnesses, the “normal” or “healthy” people around them feel the need to “walk on eggshells.” What better time than now, as Easter is upon us, to discuss this very topic? I, for one, have always wanted … Continue reading

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A Balancing Act: Talking About Arthritis and Chronic Illness – by Ashley Boynes-Shuck

I have found that it is sometimes difficult to describe my conditions, honestly, and with full-disclosure, without people “feeling bad” for me. I also hate to play the “victim” role, and I certainly try not to, but when I really delve into the complexities of the conditions I have lived with, it kind of sounds … Continue reading

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An “Ashley’s Health Diary” Update – Entry #30 – Wrapping Up 2011 and Looking Ahead to 2012 – by Ashley Boynes-Shuck

January 3rd, 2012 – I have not done one of my more personal Ashley’s Health Diary posts in a while, because I realized that it was more important for me to educate about rheumatic conditions than to talk about my own story. However, I do realize that as a patient advocate, that sharing my story … Continue reading