#PatientsHavePower: The Gift of Breakthrough Research and Clinical Trials
Advocacy / Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Autoimmune / Awareness / chronic illness / Disability / Fibromyalgia / invisible illness / Juvenile Arthritis / Lupus / pain / Personal Stories / RA awareness / rheum awareness / rheumatoid arthritis awareness / SLE / social media / sponsored / Types of Arthritis / Uncategorized / Wellness

#PatientsHavePower: The Gift of Breakthrough Research and Clinical Trials

*Disclaimer: Before I begin, let’s get the requisite disclaimer out of the way: this piece has been entered in the Patients Have Power Writing Contest run by Clara Health. It is designed to raise awareness about clinical trials. That said, I’m nonetheless still passionate about this cause, and am personally interested in everything that this … Continue reading

TheRAconnection.com — Join Today!
Advocacy / Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Autoimmune / chronic illness / Disability / Personal Stories / RA awareness / rheum awareness / rheumatoid arthritis awareness / sponsored / Types of Arthritis / Uncategorized / Wellness

TheRAconnection.com — Join Today!

I’ve recently began blogging with The RA Connection, as well as doing some admin and community management work with this wonderful site. I urge you all to join if you have RA, PsA, OA, Lupus, or AS. It is free, safe, secure, and easy to use — a great place for Community, Content, and Connection … Continue reading

Is it Juvenile Arthritis … or Farber Disease?
Advocacy / Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Autoimmune / Awareness / chronic illness / pain / rheum awareness / sponsored / Types of Arthritis / Uncategorized / Wellness

Is it Juvenile Arthritis … or Farber Disease?

It’s Arthritis Awareness Month (yay!) … so I want to bring awareness to a very rare disease that often mimics Juvenile Idiopathic Arthritis. This illness is called Farber Disease (a.k.a. Farber’s Disease, Farber’s lipogranulomatosis, ceramidase deficiency, Fibrocytic dysmucopolysaccharidosis, and Lipogranulomatosis.) Currently there are only 80 diagnosed, confirmed cases of Farber Disease worldwide! However, there may be … Continue reading

Feeling Adult-ish After My Total Knee Replacement
Advocacy / Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Ashley's Health Diary / Autoimmune / Awareness / Body Image / chronic illness / Disability / Entertainment / invisible illness / Juvenile Arthritis / pain / Personal Stories / Pop Culture / RA awareness / rheum awareness / rheumatoid arthritis awareness / selfies / social media / Types of Arthritis / Uncategorized / Wellness

Feeling Adult-ish After My Total Knee Replacement

There was a song that was popular when I was in high school called “What’s My Age Again?” by Blink 182. I’ve always related to that question: what IS my age? It’s mostly because of my rheumatoid arthritis. First off, there’s always been an issue with my actual diagnosis: yes, it WAS “juvenile” rheumatoid arthritis, … Continue reading

The Imperfection of Appropriate Language: Discussing Disability is Difficult
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The Imperfection of Appropriate Language: Discussing Disability is Difficult

I want to first start off by apologizing to anyone I may have offended in my recent article for A Woman’s Health Magazine (online version) and Women magazine (print version) entitled: For Some With Rheumatoid Arthritis, Beauty Really is Pain. I enjoyed writing this article and was very proud of it, until someone wrote me … Continue reading

X-Rays Don’t Lie
Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Body Image / Disability / invisible illness / pain / RA awareness / rheum awareness / rheumatoid arthritis awareness / Types of Arthritis / Uncategorized / Wellness

X-Rays Don’t Lie

I thought I’d share these as a follow-up to my “My Joints are 90 Years Old” post. I am having a total knee replacement of the right knee in a few weeks. I also need a right thumb joint replacement. My left wrist and right foot are beyond surgical repair. I’ve been told that my … Continue reading

Doing What We Can
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Doing What We Can

Something I’ve struggled with during my decades of illness is what I WANT to do, versus what I CAN do. I’m learning to accept that I can only do what I can. Some days, like last weekend, it is hiking up over 500 steps on the side of a mountain. Some days, like yesterday, it … Continue reading