#PatientsHavePower: The Gift of Breakthrough Research and Clinical Trials

Posted on June 8, 2018 by Arthritis Ashley • Leave a comment

*Disclaimer: Before I begin, let’s get the requisite disclaimer out of the way: this piece has been entered in the Patients Have Power Writing Contest run by Clara Health. It is designed to raise awareness about clinical trials. That said, I’m nonetheless still passionate about this cause, and am personally interested in everything that this … Continue reading →

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How RA Impacts Relationships and Self-Love: A Pfizer Facebook Live Chat with Arthritis Ashley & Dr. Logan Levkoff

Posted on June 8, 2018 by Arthritis Ashley • Leave a comment

Thank you to Pfizer for having Dr. Logan Levkoff and me on to discuss Relationships & Rheumatoid Arthritis. Filmed live at Pfizer Studios in New York City, we discussed how RA can affect relationships with our partners, our families, and, even our relationship with our selves. Check out the video on the Pfizer Facebook page, … Continue reading →

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Pfizer & Arthritis Ashley Facebook Live: May 29

Posted on May 28, 2018 by Arthritis Ashley • Leave a comment

Tomorrow (Tuesday, May 29th, 2018) at 11:45am EST, I will join Pfizer and nationally-recognized relationship expert Logan Levkoff, Ph.D, to discuss how rheumatoid arthritis (RA) impacts life, relationships, and self-esteem. We will also be introducing a fun “RA Fishbowl” exercise which can help you talk to your spouse, partner, family, friends, neighbors, and colleagues about living with … Continue reading →

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TheRAconnection.com — Join Today!

Posted on May 10, 2018 by Arthritis Ashley • Leave a comment

I’ve recently began blogging with The RA Connection, as well as doing some admin and community management work with this wonderful site. I urge you all to join if you have RA, PsA, OA, Lupus, or AS. It is free, safe, secure, and easy to use — a great place for Community, Content, and Connection … Continue reading →

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Is it Juvenile Arthritis … or Farber Disease?

Posted on May 9, 2018 by Arthritis Ashley • Leave a comment

It’s Arthritis Awareness Month (yay!) … so I want to bring awareness to a very rare disease that often mimics Juvenile Idiopathic Arthritis. This illness is called Farber Disease (a.k.a. Farber’s Disease, Farber’s lipogranulomatosis, ceramidase deficiency, Fibrocytic dysmucopolysaccharidosis, and Lipogranulomatosis.) Currently there are only 80 diagnosed, confirmed cases of Farber Disease worldwide! However, there may be … Continue reading →

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Spryngs by Brevani: Elegant Arthritis-Friendly Rings for Swollen Fingers

Posted on May 4, 2018 by Arthritis Ashley • Leave a comment

Spryngs by Brevani’s tagline is “elegance that fits comfortably for a lifetime.” I love that, because it encapsulates what this brand is all about. This upscale high-end fine jewelry line has finally come out with rings that have the arthritis patient in mind. Actually — their beautiful jewelry is well-suited to anyone whose ring size … Continue reading →

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Feeling Adult-ish After My Total Knee Replacement

Posted on October 26, 2017 by Arthritis Ashley • Leave a comment

There was a song that was popular when I was in high school called “What’s My Age Again?” by Blink 182. I’ve always related to that question: what IS my age? It’s mostly because of my rheumatoid arthritis. First off, there’s always been an issue with my actual diagnosis: yes, it WAS “juvenile” rheumatoid arthritis, … Continue reading →

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The Imperfection of Appropriate Language: Discussing Disability is Difficult

Posted on October 26, 2017 by Arthritis Ashley • 1 Comment

I want to first start off by apologizing to anyone I may have offended in my recent article for A Woman’s Health Magazine (online version) and Women magazine (print version) entitled: For Some With Rheumatoid Arthritis, Beauty Really is Pain. I enjoyed writing this article and was very proud of it, until someone wrote me … Continue reading →

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When Stars Get Sick: Glamorizing Illness or Bringing Awareness?

Posted on September 18, 2017 by Arthritis Ashley • 2 Comments

It never fails to amaze me how fired up people on the Internet get about celebrities. Like, okay … I’ve been guilty of it to an extent. I’m an admitted fangirl. I’m proudly in the “fandoms” of Britney Spears, Lady Gaga, Justin Timberlake, Taylor Swift, Beyonce, Ed Sheeran, and Oprah. I’m a Grey’s Anatomy lifer. … Continue reading →

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“What RA Looks Like” – by Healthline

Posted on September 18, 2017 by Arthritis Ashley • Leave a comment

What Rheumatoid Arthritis Looks Like In August, Healthline.com sent a film crew to my home in Pittsburgh. They followed me around for 8 hours to see what a typical day is like for me as a patient with RA. (Of course, we all know that there is no “typical” day. That day, I was able … Continue reading →