I read a really interesting piece recently about some symptoms of chronic illnesses being, not caused by, but, exacerbated by, one’s life being out-of-balance or on the wrong path i.e. wrong career, wrong spouse or romantic partner, no spiritual compass, minimal friends or social prospects, little community involvement, too much focus on the self or … Continue reading
Tag Archives: lupus
Healthline.com: $6 Million Research Partnership to Focus on New Drugs for RA, Lupus
An exciting initiative is underway and it may benefit patients with rheumatoid arthritis and lupus. This alliance includes a $6 million partnership that will focus on the research and testing of new drugs for RA and Lupus. To learn more about the AMP RA/Lupus, read my recent Healthline.com article, here: http://www.healthline.com/health-news/six-million-to-focus-on-new-drugs-for-ra-lupus-102114 Feel free to share … Continue reading
Someday is Now: How to Live Your Life Through Health Struggles
I am human. Though I strive to live a positive, beautiful life even with chronic illness, at times I grow weary of always being sick, discouraged by the pain, drained from the fatigue, and down in the dumps because of my general health situation, from an overall standpoint. I get frustrated waiting for my “someday.” … Continue reading
Orange Is The New Black and Chronic Pain: Don’t Be a Prisoner of Your Illness! – by Ashley Boynes-Shuck
Recently, I began watching the Netflix series, Orange is the New Black, also known as #OITNB. (Yes, I know that I’m late to that party.) I began to relate with some of Piper Chapman’s feelings as she is in jail, though I was unclear why, since I’ve personally not spent any time in a women’s prison. I … Continue reading
Arthritis Ashley Tells The Mighty Why She’s Happy Despite Living with Illness
Our very own Arthritis Ashley was featured on the website, “The Mighty” this week. The Mighty celebrates “the superheroes among us,” who are staying strong and triumphing despite life’s many hardships ranging from chronic illness, to disability, and more. Like us, their mission is to educate and spread awareness about various health issues. You can read … Continue reading
Don’t Bench Yourself: An Inspiring Juvenile Arthritis Story by Ashley Boynes-Shuck
Today, I spoke at an Arthritis Foundation Juvenile Arthritis Family Day event in my area. I wanted to share the text of my speech with you all below. I will have videos and photos at a later time, to share on my arthritis Facebook page. Enjoy, and feel free to leave a comment letting me know … Continue reading
Inspiration or Isolation: Which Path Will You Choose? – by Ashley Boynes-Shuck
In the world of chronic illness, there are many things about which we simply do not have a choice. I didn’t choose rheumatoid arthritis, or osteoarthritis, or celiac disease, lupus, sjogrens syndrome, chiari, and so on. Likewise, I’m sure that you did not choose whichever illnesses or disabilities that you may live with. As I’ve … Continue reading
Walking on Eggshells When Someone You Love Has Chronic Illness or Disability – by Ashley Boynes-Shuck
Sometimes, when someone lives with chronic illness, chronic pain, or a disability such as arthritis, lupus, or other rheumatic illnesses, the “normal” or “healthy” people around them feel the need to “walk on eggshells.” What better time than now, as Easter is upon us, to discuss this very topic? I, for one, have always wanted … Continue reading
Are You “Enough?” – by Ashley Boynes-Shuck
I’m not liberal enough for Democrats or conservative enough for Republicans. I’m not Christian enough for Christians, but I’m Christian enough to have atheists and agnostics mock me. I’m smart enough to have been accepted into Mensa and to possess a near-genius-level IQ, but I’m not smart enough that people meet me and immediately notice my … Continue reading
Loving Yourself Even with Chronic Illness – by Ashley Boynes-Shuck
When you love someone — a partner, a spouse, a friend, a parent, a child, a sibling, and so on — do you love them even through their imperfections? Are we not taught to accept others, flaws and all? Most of us, of course, care for our loved ones unconditionally. We look past … Continue reading