The Imperfection of Appropriate Language: Discussing Disability is Difficult

Posted on October 26, 2017 by Arthritis Ashley • 1 Comment

I want to first start off by apologizing to anyone I may have offended in my recent article for A Woman’s Health Magazine (online version) and Women magazine (print version) entitled: For Some With Rheumatoid Arthritis, Beauty Really is Pain. I enjoyed writing this article and was very proud of it, until someone wrote me … Continue reading →

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When Stars Get Sick: Glamorizing Illness or Bringing Awareness?

Posted on September 18, 2017 by Arthritis Ashley • 2 Comments

It never fails to amaze me how fired up people on the Internet get about celebrities. Like, okay … I’ve been guilty of it to an extent. I’m an admitted fangirl. I’m proudly in the “fandoms” of Britney Spears, Lady Gaga, Justin Timberlake, Taylor Swift, Beyonce, Ed Sheeran, and Oprah. I’m a Grey’s Anatomy lifer. … Continue reading →

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“What RA Looks Like” – by Healthline

Posted on September 18, 2017 by Arthritis Ashley • Leave a comment

What Rheumatoid Arthritis Looks Like In August, Healthline.com sent a film crew to my home in Pittsburgh. They followed me around for 8 hours to see what a typical day is like for me as a patient with RA. (Of course, we all know that there is no “typical” day. That day, I was able … Continue reading →

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#RealTalkRA Summit: Pharma, Fun, and Friends

Posted on September 18, 2017 by Arthritis Ashley • 1 Comment

This week, I was invited by Pfizer to attend the 2017 Real Talk Summit in New York City. While they did compensate me for my time and took care of accommodations, I’m going to go ahead and disclaim now that they are NOT paying me for this blog post, and did NOT ask *or* … Continue reading →

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My Joints Are 90 Years Old, But That’s OK

Posted on August 1, 2017 by Arthritis Ashley • 2 Comments

✨✨ Long post, but I promise it has a point. Please read to the end! (And please excuse typos.) ✨✨ In the past year, I have been told by orthopedic surgeons that my right knee looks like an 80-year-old’s. I was told that my right foot and ankle look like a 90-year-old. And yesterday, that my … Continue reading →

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Doing What We Can

Posted on April 22, 2017 by Arthritis Ashley • 1 Comment

Something I’ve struggled with during my decades of illness is what I WANT to do, versus what I CAN do. I’m learning to accept that I can only do what I can. Some days, like last weekend, it is hiking up over 500 steps on the side of a mountain. Some days, like yesterday, it … Continue reading →

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No, Lady Gaga Did NOT Confirm That She Has Rheumatoid Arthritis

Posted on April 2, 2017 by Arthritis Ashley • 5 Comments

A post has gone viral in recent days, feverishly declaring that “Lady Gaga Has RA!” “Lady Gaga Reveals She Has Rheumatoid Arthritis” and “Pop Star Lady Gaga Opens Up About Life With Rheumatoid Arthritis.” Except … she never specifically revealed that she has it. I admit that I was guilty of initially, (hesitantly) sharing it with a … Continue reading →