#RealTalkRA Summit: Pharma, Fun, and Friends
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#RealTalkRA Summit: Pharma, Fun, and Friends

  This week, I was invited by Pfizer to attend the 2017 Real Talk Summit in New York City. While they did compensate me for my time and took care of accommodations, I’m going to go ahead and disclaim now that they are NOT paying me for this blog post, and did NOT ask *or* … Continue reading

X-Rays Don’t Lie
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X-Rays Don’t Lie

I thought I’d share these as a follow-up to my “My Joints are 90 Years Old” post. I am having a total knee replacement of the right knee in a few weeks. I also need a right thumb joint replacement. My left wrist and right foot are beyond surgical repair. I’ve been told that my … Continue reading

My Joints Are 90 Years Old, But That’s OK
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My Joints Are 90 Years Old, But That’s OK

✨✨ Long post, but I promise it has a point. Please read to the end! (And please excuse typos.) ✨✨ In the past year, I have been told by orthopedic surgeons that my right knee looks like an 80-year-old’s. I was told that my right foot and ankle look like a 90-year-old. And yesterday, that my … Continue reading

Healthcare Should Be A Basic Human Right
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Healthcare Should Be A Basic Human Right

Today I was told that health insurance is unnecessary, that the doctor should just charge us for what we use. It should only be for catastrophes, not ongoing or recurring treatments. If someone is too sick to work, or elderly, or born into a poor family, “oh well,” they said — we are all born … Continue reading

Doing What We Can
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Doing What We Can

Something I’ve struggled with during my decades of illness is what I WANT to do, versus what I CAN do. I’m learning to accept that I can only do what I can. Some days, like last weekend, it is hiking up over 500 steps on the side of a mountain. Some days, like yesterday, it … Continue reading

No, Lady Gaga Did NOT Confirm That She Has Rheumatoid Arthritis
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No, Lady Gaga Did NOT Confirm That She Has Rheumatoid Arthritis

A post has gone viral in recent days, feverishly declaring that “Lady Gaga Has RA!” “Lady Gaga Reveals She Has Rheumatoid Arthritis” and “Pop Star Lady Gaga Opens Up About Life With Rheumatoid Arthritis.” Except … she never specifically revealed that she has it.  I admit that I was guilty of initially, (hesitantly) sharing it with a … Continue reading

#Longread: LEMONADE: Who Would I Be Without My Lemons?
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#Longread: LEMONADE: Who Would I Be Without My Lemons?

“Oh, stars in her eyes, She fights and she sweats those sleepless nights, But she don’t mind, she loves the grind, She grinds from Monday to Friday, Works from Friday to Sunday…” – ‘6-Inch,’ Beyoncé, Lemonade. Beyonce and Lemonade The above quote is from a song off of Beyoncé’s album, Lemonade. You see, the Grammy Awards are tonight. Grammys … Continue reading

Body Shaming + When Illness or Disability Affect Body Image, Fashion, and Beauty
Arthritis Ashley / Body Image / book / chronic illness / Disability / Entertainment / Journey to Wellness / Juvenile Arthritis / Lady Gaga / Lupus / pain / Personal Stories / Pop Culture / RA awareness / rheum awareness / rheumatoid arthritis awareness / Types of Arthritis / Uncategorized / Wellness

Body Shaming + When Illness or Disability Affect Body Image, Fashion, and Beauty

Body-shaming is sadly a very real phenomenon. I mean, just look at the awesome and mega-fit Lady Gaga  (who I LOVE, by the way!) who was shamed and trolled over a practically-nonexistent “belly roll” during the Super Bowl.  It almost became a bigger topic of conversation than her stellar, iconic, and historically-great Super Bowl Halftime Show. … Continue reading

#Longread: The Emotions of Thinking and Talking About Illness
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#Longread: The Emotions of Thinking and Talking About Illness

I’ve written and posted before about hiding our pain to spare the feelings of others, and many similar topics of conversation. I have also written about the emotions of guilt, resentment, and burden that can accompany a lifelong illness or disability. I decided to revisit the topic and reframe it in a couple of new ways. The first … Continue reading

Walking in My Shoes: Keeping Perspective With a Chronic Health Issue
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Walking in My Shoes: Keeping Perspective With a Chronic Health Issue

Today I decided to post a photo to my blog that I had posted on Facebook and Instagram back in November, 2016. Since I finally have my custom medial-unloader knee brace and my custom permanent Arizona cast for my foot, I decided that this particular post would be worthy of a re-share, and you will see … Continue reading