Pay No Attention to the Man Behind the Curtain: Public Selfies & Private Illness
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Pay No Attention to the Man Behind the Curtain: Public Selfies & Private Illness

“Pay no attention to that man behind the curtain.”  It’s one of the most powerful lines from the movie and book, The Wizard of Oz. It’s such a simple quote — so relevant to the scene, that we usually don’t think of the symbolism that lies within it. it got me thinking, though, about “the … Continue reading

Healthline.com: $6 Million Research Partnership to Focus on New Drugs for RA, Lupus
Arthritis / arthritis awareness / Arthritis Foundation / rheum awareness / rheumatoid arthritis awareness / Types of Arthritis

Healthline.com: $6 Million Research Partnership to Focus on New Drugs for RA, Lupus

An exciting initiative is underway and it may benefit patients with rheumatoid arthritis and lupus. This alliance includes a $6 million partnership that will focus on the research and testing of new drugs for RA and Lupus. To learn more about the AMP RA/Lupus, read my recent Healthline.com article, here: http://www.healthline.com/health-news/six-million-to-focus-on-new-drugs-for-ra-lupus-102114 Feel free to share … Continue reading

Advocacy / Arthritis / Ashley's Health Diary / Juvenile Arthritis / Personal Stories / Types of Arthritis / Uncategorized

Chemotherapy and Arthritis – by Ashley Boynes-Shuck

I will admit that I have always been hesitant to describe my rheumatoid arthritis medications as chemo, or “cancer drugs.” Part of this is my aversion to pity; the other part was that, at times, people use the term “chemo” incorrectly when describing their arthritis treatments. Lastly, I’ve always felt that it was a bit … Continue reading

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The Juvenile Arthritis / Cancer Link – by Ashley Boynes-Shuck

Most of us are aware that there is a heightened risk for cancer if diagnosed with rheumatoid arthritis or other autoimmune diseases, because many of them “act” similarly at the cellular level. Additionally, certain medications may put RA patients at higher risk — but these same medications can ironically be used to treat cancer. “RA … Continue reading

Advocacy / Arthritis / Arthritis Foundation / Ashley's Health Diary / Awareness / Journey to Wellness / Personal Stories / Types of Arthritis / Uncategorized / Wellness

An “Ashley’s Health Diary” Update – Entry #30 – Wrapping Up 2011 and Looking Ahead to 2012 – by Ashley Boynes-Shuck

January 3rd, 2012 – I have not done one of my more personal Ashley’s Health Diary posts in a while, because I realized that it was more important for me to educate about rheumatic conditions than to talk about my own story. However, I do realize that as a patient advocate, that sharing my story … Continue reading

Advocacy / Arthritis / Arthritis Foundation / Awareness / Types of Arthritis / Uncategorized / Wellness

Potential Good News for Rheumatoid Arthritis Patients – by Ashley Boynes-Shuck

Last weekend was the annual American College of Rheumatology Conference, and though I was not in attendance, I learned that some intriguing information was revealed. Much news, information, and research was shared, but there were a few key elements that could mean good things for those with rheumatoid arthritis. Though the information has been “out … Continue reading

Advocacy / Arthritis / Arthritis Foundation / Awareness / Juvenile Arthritis / Personal Stories / Types of Arthritis / Uncategorized

“Ashley Goes to Washington!” – Advocating for Arthritis: You Can Do It Too! – by Ashley Boynes-Shuck

Recently, I took part in the American College of Rheumatology ACR Advocates conference in Washington, D.C. In the past, I’d done a lot of Arthritis Foundation e-advocacy events online, but this time when I was asked to speak to Congress and advocate for arthritis, I simply couldn’t pass it up. So, with my mom as … Continue reading

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An “Arthritis Ashley” Update: Marriage, Lupus, and Loving Life! – Ashley’s Health Diary – Entry #29 – by Ashley Boynes-Shuck

July 15, 2011  It has been a while since I’ve written in my online “Health Diary” and updated you all on my health progress and how I’ve been, and so I figured that I am well overdue! First off, I’m now a Mrs!  I got married to the love of my life, Mike, on the … Continue reading