“Pay no attention to that man behind the curtain.” It’s one of the most powerful lines from the movie and book, The Wizard of Oz. It’s such a simple quote — so relevant to the scene, that we usually don’t think of the symbolism that lies within it. it got me thinking, though, about “the … Continue reading
Tag Archives: Chiari
Finding Faith During Times of Chaos
I’ve learned something: Illness turns many people away from God. Suffering makes many question their faith. However, these times of chaos and seemingly “ungodly” pain causes others to go the opposite direction, running towards God and embracing their faith with arms wide open. Of course, there are those of you who are agnostics and atheists, … Continue reading
Someday is Now: How to Live Your Life Through Health Struggles
I am human. Though I strive to live a positive, beautiful life even with chronic illness, at times I grow weary of always being sick, discouraged by the pain, drained from the fatigue, and down in the dumps because of my general health situation, from an overall standpoint. I get frustrated waiting for my “someday.” … Continue reading
Inspiration or Isolation: Which Path Will You Choose? – by Ashley Boynes-Shuck
In the world of chronic illness, there are many things about which we simply do not have a choice. I didn’t choose rheumatoid arthritis, or osteoarthritis, or celiac disease, lupus, sjogrens syndrome, chiari, and so on. Likewise, I’m sure that you did not choose whichever illnesses or disabilities that you may live with. As I’ve … Continue reading
What Story Does Your Face Tell? – by Ashley Boynes-Shuck
Arthritis Month has come to an end, but just because June is here, doesn’t mean we shouldn’t keep on spreading arthritis awareness. During the month of May, I saw and heard a lot from the Arthritis Foundation’s “Faces of Arthritis” campaign — a wonderful, and sometimes eye-opening, initiative. I thought long and hard about the Face of Arthritis, and … Continue reading
An “Arthritis Ashley” Update: Marriage, Lupus, and Loving Life! – Ashley’s Health Diary – Entry #29 – by Ashley Boynes-Shuck
July 15, 2011 It has been a while since I’ve written in my online “Health Diary” and updated you all on my health progress and how I’ve been, and so I figured that I am well overdue! First off, I’m now a Mrs! I got married to the love of my life, Mike, on the … Continue reading
Beauty is Pain ~ Ashley’s Health Diary, Entry #28 ~ by Ashley Boynes
The saying goes, “pain is beauty and beauty is pain…” or, another adaptation that I’ve found even more poignant: “The pain passes, but the beauty remains.” I agree. While we could talk about the superficial, painful things that we do for beauty such as eyebrow plucking, ear piercing, brutal diets, laser peels, wearing corsets, high … Continue reading
Keeping Up with Chiari – and Some Inspirational Thoughts ~ Ashley’s Health Diary, Entry #27 ~ by Ashley Boynes
February 9th, 2011 Exactly one week ago, I was in the hospital just a couple hours out of neurosurgery. I had brain surgery on February 2nd, and am doing seemingly well. I haven’t posted a “health diary” entry in a while, and some of you were inquiring about it, so here it is! Just a … Continue reading
Broken Dolls: The Things and People We Keep, Flaws and All ~ by Ashley Boynes
I’m not a hoarder. I do keep things, though, that are of great sentimental value. One of these many “things” is, to me, not just a “thing” but a very real part of my life. Her name is Winnie. She is a 27-year-old Cabbage Patch Kid doll. She is dirty. Her hair is braided in … Continue reading
Some Anecdotes & Some Silver Lining: Stories of arthritic hands, Lady Gaga, and advocating for yourself and your health! ~ Ashley’s Health Diary, Entry #26
Entry #26 – December 3rd, 2010 I’ve got a few interesting antecdotes to share in this entry, and so I’ll split it up into a few separate stories, if you all don’t mind! First let me tell you about my hands. (Bear with me here!) In a previous post, I bemoaned my “ugly hands” and … Continue reading