Is it Juvenile Arthritis … or Farber Disease?

Posted on May 9, 2018 by Arthritis Ashley • Leave a comment

It’s Arthritis Awareness Month (yay!) … so I want to bring awareness to a very rare disease that often mimics Juvenile Idiopathic Arthritis. This illness is called Farber Disease (a.k.a. Farber’s Disease, Farber’s lipogranulomatosis, ceramidase deficiency, Fibrocytic dysmucopolysaccharidosis, and Lipogranulomatosis.) Currently there are only 80 diagnosed, confirmed cases of Farber Disease worldwide! However, there may be … Continue reading →

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Education and JA: Get the Facts on 504 Plans and Juvenile Arthritis – by Ashley Boynes-Shuck

Posted on March 22, 2013 by Arthritis Ashley • 3 Comments

Every child has unique and specific needs when it comes to their education — but children with conditions such as juvenile arthritis may have an even more difficult time at school. Whether it is carrying loaded backpacks or heavy books, having trouble participating in gym class, missing school altogether, or sitting for extended periods of … Continue reading →

Advocacy / Arthritis / Arthritis Foundation / Awareness / Juvenile Arthritis / Types of Arthritis

The Juvenile Arthritis Conference is Underway! by Ashley Boynes-Shuck

Posted on July 8, 2011 by Arthritis Ashley • Leave a comment

Arthritis is Unacceptable….and Juvenile Arthritis is even more Unacceptable! Did you know that Kids Get Arthritis, Too? Every year, the Arthritis Foundation organizes a national Juvenile Arthritis Conference during the month of July, which is JA Awareness Month. Over 300,000 children in the United States live with a form of Juvenile Arthritis, and it is … Continue reading →