Is it Juvenile Arthritis … or Farber Disease?

Posted on May 9, 2018 by Arthritis Ashley • Leave a comment

It’s Arthritis Awareness Month (yay!) … so I want to bring awareness to a very rare disease that often mimics Juvenile Idiopathic Arthritis. This illness is called Farber Disease (a.k.a. Farber’s Disease, Farber’s lipogranulomatosis, ceramidase deficiency, Fibrocytic dysmucopolysaccharidosis, and Lipogranulomatosis.) Currently there are only 80 diagnosed, confirmed cases of Farber Disease worldwide! However, there may be … Continue reading →

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#Longread: LEMONADE: Who Would I Be Without My Lemons?

Posted on February 12, 2017 by Arthritis Ashley • 10 Comments

“Oh, stars in her eyes, She fights and she sweats those sleepless nights, But she don’t mind, she loves the grind, She grinds from Monday to Friday, Works from Friday to Sunday…” – ‘6-Inch,’ Beyoncé, Lemonade. Beyonce and Lemonade The above quote is from a song off of Beyoncé’s album, Lemonade. You see, the Grammy Awards are tonight. Grammys … Continue reading →

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The Great JA vs. RA Debacle

Posted on July 7, 2016 by Arthritis Ashley • 1 Comment

This is a Facebook-rant-turned-blog post. I am definitely looking for some feedback/insight on this one, because when it comes to The Great JA vs. RA Debacle, I don’t know what is considered to be the standard, or what is the “proper” and acceptable approach. Even whilst doing research, I seem to encounter different answers on … Continue reading →

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The Juvenile Arthritis Conference is Underway! by Ashley Boynes-Shuck

Posted on July 8, 2011 by Arthritis Ashley • Leave a comment

Arthritis is Unacceptable….and Juvenile Arthritis is even more Unacceptable! Did you know that Kids Get Arthritis, Too? Every year, the Arthritis Foundation organizes a national Juvenile Arthritis Conference during the month of July, which is JA Awareness Month. Over 300,000 children in the United States live with a form of Juvenile Arthritis, and it is … Continue reading →

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A Nation Unaware: We Need To Increase Juvenile Arthritis Awareness – by Ashley Boynes

Posted on January 6, 2011 by Arthritis Ashley • 6 Comments

“She’s just a hypochondriac.” “He’s lying.” “It’s all in their head. They just want attention.” “You’re faking!” “Oh, you’re too young for arthritis.” These are all phrases that children and teens with juvenile arthritis will, unfortunately, come across many times during the course of their lives and their illness. Even the adults that these kids … Continue reading →