Most of you know that I am a big fan of integrative medicine: a mix of natural or alternative methodologies and traditional pharmaceutical treatments. In fact, one of the first “real” published articles I wrote was in a local magazine (called South Fayette & Neighbors, now known as IN South Fayette,) in 2006, and it … Continue reading
Tag Archives: juvenile systemic arthritis
Is it Juvenile Arthritis … or Farber Disease?
It’s Arthritis Awareness Month (yay!) … so I want to bring awareness to a very rare disease that often mimics Juvenile Idiopathic Arthritis. This illness is called Farber Disease (a.k.a. Farber’s Disease, Farber’s lipogranulomatosis, ceramidase deficiency, Fibrocytic dysmucopolysaccharidosis, and Lipogranulomatosis.) Currently there are only 80 diagnosed, confirmed cases of Farber Disease worldwide! However, there may be … Continue reading
Feeling Adult-ish After My Total Knee Replacement
There was a song that was popular when I was in high school called “What’s My Age Again?” by Blink 182. I’ve always related to that question: what IS my age? It’s mostly because of my rheumatoid arthritis. First off, there’s always been an issue with my actual diagnosis: yes, it WAS “juvenile” rheumatoid arthritis, … Continue reading
X-Rays Don’t Lie
I thought I’d share these as a follow-up to my “My Joints are 90 Years Old” post. I am having a total knee replacement of the right knee in a few weeks. I also need a right thumb joint replacement. My left wrist and right foot are beyond surgical repair. I’ve been told that my … Continue reading
#Longread: LEMONADE: Who Would I Be Without My Lemons?
“Oh, stars in her eyes, She fights and she sweats those sleepless nights, But she don’t mind, she loves the grind, She grinds from Monday to Friday, Works from Friday to Sunday…” – ‘6-Inch,’ Beyoncé, Lemonade. Beyonce and Lemonade The above quote is from a song off of Beyoncé’s album, Lemonade. You see, the Grammy Awards are tonight. Grammys … Continue reading
When RA Tries to Get in the Way (But I Won’t Let It)
I set off for this summer to be my “summer of hobbies.” My summer even has its own Instagram hashtag, #AshSummerOfHobbies2016! But, I didn’t anticipate RA to get in the way. (This is something I discussed in a recent Arthritis Ashley Facebook Live Chat.) I’m very proud of myself for pushing through, though. RA and … Continue reading
The Great JA vs. RA Debacle
This is a Facebook-rant-turned-blog post. I am definitely looking for some feedback/insight on this one, because when it comes to The Great JA vs. RA Debacle, I don’t know what is considered to be the standard, or what is the “proper” and acceptable approach. Even whilst doing research, I seem to encounter different answers on … Continue reading
A Nation Unaware: We Need To Increase Juvenile Arthritis Awareness – by Ashley Boynes
“She’s just a hypochondriac.” “He’s lying.” “It’s all in their head. They just want attention.” “You’re faking!” “Oh, you’re too young for arthritis.” These are all phrases that children and teens with juvenile arthritis will, unfortunately, come across many times during the course of their lives and their illness. Even the adults that these kids … Continue reading