Is it Juvenile Arthritis … or Farber Disease?
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Is it Juvenile Arthritis … or Farber Disease?

It’s Arthritis Awareness Month (yay!) … so I want to bring awareness to a very rare disease that often mimics Juvenile Idiopathic Arthritis. This illness is called Farber Disease (a.k.a. Farber’s Disease, Farber’s lipogranulomatosis, ceramidase deficiency, Fibrocytic dysmucopolysaccharidosis, and Lipogranulomatosis.) Currently there are only 80 diagnosed, confirmed cases of Farber Disease worldwide! However, there may be … Continue reading

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The Pediatric Rheumatology Shortage: What’s a Juvenile Arthritis Patient to Do? – by Ashley Boynes-Shuck

Approximately 300,000 American children and teens live with juvenile arthritis – that’s about 1 in 250. Yes – you read that correctly: 1 in 250 kids suffers from arthritis. If that number isn’t eye-opening enough, check out this staggering statistic: there are only 250 active and board certified pediatric rheumatologists in the United States. Unfortunately, … Continue reading

Advocacy / Arthritis / Arthritis Foundation / Juvenile Arthritis / Types of Arthritis / Uncategorized / Wellness

Kids, Teens, and Young Adults Get Arthritis, Too! Celebrate JA Awareness in July – by Ashley Boynes-Shuck

Kids and young adults get arthritis, too. And July is Juvenile Arthritis Awareness Month. According to the Arthritis Foundation, JA refers to any form of arthritis or arthritis-related condition that develops in children or teenagers who are less than 18 years of age. Approximately 294,000 children under the age of 18 are affected by pediatric … Continue reading