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Positive vs. Negative: The Image of Arthritis – by Ashley Boynes-Shuck

Undoubtedly, when one thinks of arthritis or rheumatic illness, not many “good” images come to mind. Chronic illness, disabilities, pain – these aren’t “positive” things. So, there becomes a real frustration – and a real disconnect – for many patients who see commercials for arthritis drugs that feature smiling, seemingly healthy and pain-free individuals who … Continue reading

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Self Esteem, Body Image, and Chronic Illness – by Ashley Boynes-Shuck

Many of us who live with chronic illness – especially rheumatic and autoimmune illnesses, or conditions that cause chronic pain – can get frustrated at our body at times for seemingly working against us. However, there are other body issues that can come along with being chronically ill. Many medications cause appearance-related side effects: skin … Continue reading

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An “Arthritis Ashley” Update: Marriage, Lupus, and Loving Life! – Ashley’s Health Diary – Entry #29 – by Ashley Boynes-Shuck

July 15, 2011  It has been a while since I’ve written in my online “Health Diary” and updated you all on my health progress and how I’ve been, and so I figured that I am well overdue! First off, I’m now a Mrs!  I got married to the love of my life, Mike, on the … Continue reading

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In a Perfect World – A Life Without Illness: What Would You Do? – by Ashley Boynes

 Today there was a “trending topic” on Twitter that simply said, “Serious Question” and provoked users to ask their followers a serious question to answer. I thought about what I’d like to hear from my “tweeps” – especially those who are chronically ill or disabled – and the question I decided to pose was, “We … Continue reading

Advocacy / Arthritis / Arthritis Foundation / Ashley's Health Diary / Awareness / Juvenile Arthritis / Personal Stories / Uncategorized / Wellness

“What I Know For Sure” – Chronic Illness Edition … by Ashley Boynes – inspired by Oprah Winfrey

Oprah has taught me a lot of things. She’s one of my idols, and, to me, a prime example of “overcoming” in the face of adversity to truly live your life to its fullest potential. After writing in since high school (I graduated in 2002) and being on a ticket waiting list for over 2 … Continue reading

Advocacy / Arthritis / Arthritis Foundation / Awareness / Juvenile Arthritis / Uncategorized / Wellness

Just Say YES … Live Your Life Despite Arthritis – by Ashley Boynes

I recently bought a book entitled, “A Place of Yes” and, though I’ve yet to start reading it, I realized last week before even purchasing it that I am in a place of “yes” myself. I’ve learned to “just say yes” despite arthritis and other chronic ailments. After all, we only live once….so why not … Continue reading

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Beauty is Pain ~ Ashley’s Health Diary, Entry #28 ~ by Ashley Boynes

The  saying goes, “pain is beauty and beauty is pain…” or, another adaptation that I’ve found even more poignant: “The pain passes, but the beauty remains.” I agree. While we could talk about the superficial, painful things that we do for beauty such as eyebrow plucking, ear piercing, brutal diets, laser peels, wearing corsets, high … Continue reading

Advocacy / Arthritis / Arthritis Foundation / Awareness / Juvenile Arthritis / Uncategorized / Wellness

Talking About Pain: Can It Affect The Way We Feel? – by Ashley Boynes

Last week, I challenged Facebook friends to describe their chronic illness in 3 words. Many of these people had Rheumatoid Arthritis and similar conditions, and many of them used words such as “frustrating, isolating, ugly, lonely, indescribable, difficult, invisible, painful, hurting, tiring, depressing, agonizing, expensive, challenging, life-changing, annoying, misunderstood, tearful, excruciating, exhausting, consuming, limiting” and … Continue reading

Advocacy / Arthritis / Ashley's Health Diary / Awareness / Juvenile Arthritis / Personal Stories / Uncategorized / Wellness

Freedom: Making Choices and Living Judgment-Free with Chronic Illness – by Ashley Boynes

Martin Luther King, Jr. believed in FREEDOM. In choice. In equal rights. In humanity “getting along.” In the destruction of prejudices and discrimination, and the erasure of hate. Yet, even in 2011, pockets of the population face discrimination, have their “choices” (or lack thereof) dictated to them, and face judgment, regardless of the leaps and … Continue reading