Is it Juvenile Arthritis … or Farber Disease?

Posted on May 9, 2018 by Arthritis Ashley • Leave a comment

It’s Arthritis Awareness Month (yay!) … so I want to bring awareness to a very rare disease that often mimics Juvenile Idiopathic Arthritis. This illness is called Farber Disease (a.k.a. Farber’s Disease, Farber’s lipogranulomatosis, ceramidase deficiency, Fibrocytic dysmucopolysaccharidosis, and Lipogranulomatosis.) Currently there are only 80 diagnosed, confirmed cases of Farber Disease worldwide! However, there may be … Continue reading →

Advocacy / Arthritis Ashley / Autoimmune / Awareness / healthline / Juvenile Arthritis / Lupus / Types of Arthritis / Uncategorized / Wellness

All About the Autoimmune Registry

Posted on January 13, 2017 by Arthritis Ashley • Leave a comment

Guys, I’m really excited to be working with a great new 501c3 nonprofit called The Autoimmune Registry. We are in the process of creating a hub for research, statistics, and patient data on all autoimmune illnesses. We also aim to establish prevalence of these disease, as right now the estimates for autoimmune disease prevalence are all … Continue reading →