Category Archives: Personal Stories

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Advocate for Arthritis! Learn About the 2012 Advocacy Summit & E-Advocate Opportunities – by Ashley Boynes-Shuck

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Ignoring arthritis is unacceptable. Right? Right! So, it’s time to let Congress know where you stand on arthritis and arthritis-related health issues. So take a stand, raise your voice, make a difference, and let the United States know that arthritis is unacceptable! The annual Advocacy Summit brings together advocates, young and old, from across the … Continue reading →

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An “Ashley’s Health Diary” Update – Entry #30 – Wrapping Up 2011 and Looking Ahead to 2012 – by Ashley Boynes-Shuck

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January 3rd, 2012 – I have not done one of my more personal Ashley’s Health Diary posts in a while, because I realized that it was more important for me to educate about rheumatic conditions than to talk about my own story. However, I do realize that as a patient advocate, that sharing my story … Continue reading →

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Outward Appearances: Looking Good with Chronic Illness – by Ashley Boynes-Shuck

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I am not ugly. But, sometimes being sick makes me feel like I am. Believe it or not, rheumatoid arthritis and other autoimmune conditions can certainly age you; all the while “stealing your pretty.” I used to get mad about it, and now I just learn to adapt. There are so many ways to still … Continue reading →

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Arthritis and Chronic Illness: Stripping Away Labels and Stigma – by Ashley Boynes-Shuck

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When I was in graduate school, I took one psychology course that was oriented towards special education. One important thing that I took away from it was that we should always use, “people-first” language. At the time, I only thought of it in the realm of dealing with children with special needs, but, now, I … Continue reading →

Advocacy / Arthritis / Arthritis Foundation / Awareness / Juvenile Arthritis / Personal Stories / Types of Arthritis / Uncategorized / Wellness

What’s Your ‘Weapon’ Against Arthritis? – by Ashley Boynes-Shuck

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    I recently read an article about writing being a good way to “beat the blues.” There was scientific evidence behind it, but, more importantly, I can attest to the validity of it on a personal level. The Arthritis Foundation encourages us all to have a “weapon against arthritis.” Most of these weapons of choice are … Continue reading →

Advocacy / Arthritis / Ashley's Health Diary / Awareness / Personal Stories / Uncategorized / Wellness

Defined by an Illness? Milking Your Sickness? That’s Not My Cup of Tea! by Ashley Boynes-Shuck

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[Disclaimer: this post isn’t meant to offend anyone and is all personal opinion relating to MYSELF, my unique individual situation, and how I live my life. It isn’t casting judgment on people who have a different point of view, rather, it is just explaining my perspective and offering some food for thought……] In a world … Continue reading →

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“Ashley Goes to Washington!” – Advocating for Arthritis: You Can Do It Too! – by Ashley Boynes-Shuck

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Recently, I took part in the American College of Rheumatology ACR Advocates conference in Washington, D.C. In the past, I’d done a lot of Arthritis Foundation e-advocacy events online, but this time when I was asked to speak to Congress and advocate for arthritis, I simply couldn’t pass it up. So, with my mom as … Continue reading →

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Joys and Pains: A Rheumatoid Arthritis Poem – by Ashley Boynes-Shuck

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For today’s blog post, I would like to do something a little different, and share with you all a poem that I wrote about life with rheumatoid arthritis and other rheumatic conditions/chronic illnesses. It is called Joys and Pains. Please enjoy! “Unrelenting pain and never-ceasing fatigue. Hurts and aches in every place. Wondering at times, … Continue reading →

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Coping while Giving Back: The Health Benefits of Doing Good by Ashley Boynes-Shuck

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Lately, I’ve been astounded by the amount of people who comment upon my strength and positivity in the face of my multiple health problems. A lot of them have the same question: how do I cope? I have thought about it, and I’d like to answer that question for you now. The truth is — … Continue reading →

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The “Intangibles” of Rheumatoid Arthritis & Chronic Illness by Ashley Boynes-Shuck

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Living with any illness is a challenge; but having an “invisible” illness is especially difficult. How can you make people understand your condition when  your symptoms and your disabilities are often hidden? Yesterday, I had a rare weak moment where I was very much struggling to stay positive. Since we’re all human and entitled to … Continue reading →