#PatientsHavePower: The Gift of Breakthrough Research and Clinical Trials
Advocacy / Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Autoimmune / Awareness / chronic illness / Disability / Fibromyalgia / invisible illness / Juvenile Arthritis / Lupus / pain / Personal Stories / RA awareness / rheum awareness / rheumatoid arthritis awareness / SLE / social media / sponsored / Types of Arthritis / Uncategorized / Wellness

#PatientsHavePower: The Gift of Breakthrough Research and Clinical Trials

*Disclaimer: Before I begin, let’s get the requisite disclaimer out of the way: this piece has been entered in the Patients Have Power Writing Contest run by Clara Health. It is designed to raise awareness about clinical trials. That said, I’m nonetheless still passionate about this cause, and am personally interested in everything that this … Continue reading

Cupping, Gua Sha, and Acupuncture: Can They Help with Arthritis and Chronic Pain?
Arthritis / Arthritis Ashley / arthritis awareness / invisible illness / Juvenile Arthritis / Lupus / pain / Personal Stories / RA awareness / rheum awareness / rheumatoid arthritis awareness / Types of Arthritis / Uncategorized / Wellness

Cupping, Gua Sha, and Acupuncture: Can They Help with Arthritis and Chronic Pain?

Most of you know that I am a big fan of integrative medicine: a mix of natural or alternative methodologies and traditional pharmaceutical treatments. In fact, one of the first “real” published articles I wrote was in a local magazine (called South Fayette & Neighbors, now known as IN South Fayette,) in 2006, and it … Continue reading

Doing What We Can
Arthritis / Arthritis Ashley / arthritis blog / Autoimmune / chronic illness / Disability / invisible illness / pain / Personal Stories / RA awareness / rheum awareness / rheumatoid arthritis awareness / Types of Arthritis / Uncategorized

Doing What We Can

Something I’ve struggled with during my decades of illness is what I WANT to do, versus what I CAN do. I’m learning to accept that I can only do what I can. Some days, like last weekend, it is hiking up over 500 steps on the side of a mountain. Some days, like yesterday, it … Continue reading

#Longread: LEMONADE: Who Would I Be Without My Lemons?
Advocacy / Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Arthritis Foundation / Ashley's Health Diary / Autoimmune / Awareness / Body Image / chronic illness / Disability / Entertainment / giveaway / invisible illness / Lupus / pain / Personal Stories / Pop Culture / RA awareness / rheum awareness / rheumatoid arthritis awareness / social media / Types of Arthritis / Uncategorized

#Longread: LEMONADE: Who Would I Be Without My Lemons?

“Oh, stars in her eyes, She fights and she sweats those sleepless nights, But she don’t mind, she loves the grind, She grinds from Monday to Friday, Works from Friday to Sunday…” – ‘6-Inch,’ Beyoncé, Lemonade. Beyonce and Lemonade The above quote is from a song off of Beyoncé’s album, Lemonade. You see, the Grammy Awards are tonight. Grammys … Continue reading

Arthritis / Arthritis Foundation / Awareness / Juvenile Arthritis / Personal Stories / Types of Arthritis / Uncategorized / Wellness

Managing Time with Chronic Illness – by Ashley Boynes-Shuck

Sometimes, it’s hard to find time for things you want and need to do, while living with chronic illness. I get it. It’s difficult, and it’s even harder to explain to others. It’s been described in terms of spoons, and in many other ways, ranging from the creative to the absurd. That said, time management … Continue reading

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Inspiration or Isolation: Which Path Will You Choose? – by Ashley Boynes-Shuck

In the world of chronic illness, there are many things about which we simply do not have a choice. I didn’t choose rheumatoid arthritis, or osteoarthritis, or celiac disease, lupus, sjogrens syndrome, chiari, and so on. Likewise, I’m sure that you did not choose whichever illnesses or disabilities that you may live with. As I’ve … Continue reading

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Fatigue vs. Being Tired: What’s the Difference? – by Ashley Boynes-Shuck

To put it simply: being tired is NOT the same thing as having fatigue. The type of fatigue that comes along with chronic illness and autoimmune diseases is unlike any other kind of exhaustion that most healthy people will experience in their lives. As an “e-patient” and an online advocate for people with rheumatic and … Continue reading