#PatientsHavePower: The Gift of Breakthrough Research and Clinical Trials
Advocacy / Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Autoimmune / Awareness / chronic illness / Disability / Fibromyalgia / invisible illness / Juvenile Arthritis / Lupus / pain / Personal Stories / RA awareness / rheum awareness / rheumatoid arthritis awareness / SLE / social media / sponsored / Types of Arthritis / Uncategorized / Wellness

#PatientsHavePower: The Gift of Breakthrough Research and Clinical Trials

*Disclaimer: Before I begin, let’s get the requisite disclaimer out of the way: this piece has been entered in the Patients Have Power Writing Contest run by Clara Health. It is designed to raise awareness about clinical trials. That said, I’m nonetheless still passionate about this cause, and am personally interested in everything that this … Continue reading

How RA Impacts Relationships and Self-Love: A Pfizer Facebook Live Chat with Arthritis Ashley & Dr. Logan Levkoff
Advocacy / Arthritis / Arthritis Ashley / Body Image / chronic illness / Disability / Personal Stories / RA awareness / rheumatoid arthritis awareness / social media / sponsored / Uncategorized

How RA Impacts Relationships and Self-Love: A Pfizer Facebook Live Chat with Arthritis Ashley & Dr. Logan Levkoff

Thank you to Pfizer for having Dr. Logan Levkoff and me on to discuss Relationships & Rheumatoid Arthritis. Filmed live at Pfizer Studios in New York City, we discussed how RA can affect relationships with our partners, our families, and, even our relationship with our selves. Check out the video on the Pfizer Facebook page, … Continue reading

Cupping, Gua Sha, and Acupuncture: Can They Help with Arthritis and Chronic Pain?
Arthritis / Arthritis Ashley / arthritis awareness / invisible illness / Juvenile Arthritis / Lupus / pain / Personal Stories / RA awareness / rheum awareness / rheumatoid arthritis awareness / Types of Arthritis / Uncategorized / Wellness

Cupping, Gua Sha, and Acupuncture: Can They Help with Arthritis and Chronic Pain?

Most of you know that I am a big fan of integrative medicine: a mix of natural or alternative methodologies and traditional pharmaceutical treatments. In fact, one of the first “real” published articles I wrote was in a local magazine (called South Fayette & Neighbors, now known as IN South Fayette,) in 2006, and it … Continue reading

Feeling Adult-ish After My Total Knee Replacement
Advocacy / Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Ashley's Health Diary / Autoimmune / Awareness / Body Image / chronic illness / Disability / Entertainment / invisible illness / Juvenile Arthritis / pain / Personal Stories / Pop Culture / RA awareness / rheum awareness / rheumatoid arthritis awareness / selfies / social media / Types of Arthritis / Uncategorized / Wellness

Feeling Adult-ish After My Total Knee Replacement

There was a song that was popular when I was in high school called “What’s My Age Again?” by Blink 182. I’ve always related to that question: what IS my age? It’s mostly because of my rheumatoid arthritis. First off, there’s always been an issue with my actual diagnosis: yes, it WAS “juvenile” rheumatoid arthritis, … Continue reading

When Stars Get Sick: Glamorizing Illness or Bringing Awareness?
Advocacy / Arthritis Ashley / Autoimmune / Awareness / Body Image / chronic illness / Entertainment / invisible illness / Lady Gaga / Lupus / Personal Stories / Pop Culture / rheum awareness / Selena Gomez / social media / Types of Arthritis / Uncategorized / Wellness

When Stars Get Sick: Glamorizing Illness or Bringing Awareness?

It never fails to amaze me how fired up people on the Internet get about celebrities. Like, okay … I’ve been guilty of it to an extent. I’m an admitted fangirl. I’m proudly in the “fandoms” of Britney Spears, Lady Gaga, Justin Timberlake, Taylor Swift, Beyonce, Ed Sheeran, and Oprah. I’m a Grey’s Anatomy lifer. … Continue reading

“What RA Looks Like” – by Healthline
Advocacy / Arthritis / Arthritis Ashley / Autoimmune / Awareness / Body Image / chronic illness / healthline / invisible illness / Personal Stories / RA awareness / rheum awareness / rheumatoid arthritis awareness / social media / Types of Arthritis / Uncategorized / Wellness

“What RA Looks Like” – by Healthline

What Rheumatoid Arthritis Looks Like In August, Healthline.com sent a film crew to my home in Pittsburgh. They followed me around for 8 hours to see what a typical day is like for me as a patient with RA. (Of course, we all know that there is no “typical” day. That day, I was able … Continue reading

Doing What We Can
Arthritis / Arthritis Ashley / arthritis blog / Autoimmune / chronic illness / Disability / invisible illness / pain / Personal Stories / RA awareness / rheum awareness / rheumatoid arthritis awareness / Types of Arthritis / Uncategorized

Doing What We Can

Something I’ve struggled with during my decades of illness is what I WANT to do, versus what I CAN do. I’m learning to accept that I can only do what I can. Some days, like last weekend, it is hiking up over 500 steps on the side of a mountain. Some days, like yesterday, it … Continue reading

#Longread: LEMONADE: Who Would I Be Without My Lemons?
Advocacy / Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Arthritis Foundation / Ashley's Health Diary / Autoimmune / Awareness / Body Image / chronic illness / Disability / Entertainment / giveaway / invisible illness / Lupus / pain / Personal Stories / Pop Culture / RA awareness / rheum awareness / rheumatoid arthritis awareness / social media / Types of Arthritis / Uncategorized

#Longread: LEMONADE: Who Would I Be Without My Lemons?

“Oh, stars in her eyes, She fights and she sweats those sleepless nights, But she don’t mind, she loves the grind, She grinds from Monday to Friday, Works from Friday to Sunday…” – ‘6-Inch,’ Beyoncé, Lemonade. Beyonce and Lemonade The above quote is from a song off of Beyoncé’s album, Lemonade. You see, the Grammy Awards are tonight. Grammys … Continue reading

Body Shaming + When Illness or Disability Affect Body Image, Fashion, and Beauty
Arthritis Ashley / Body Image / book / chronic illness / Disability / Entertainment / Journey to Wellness / Juvenile Arthritis / Lady Gaga / Lupus / pain / Personal Stories / Pop Culture / RA awareness / rheum awareness / rheumatoid arthritis awareness / Types of Arthritis / Uncategorized / Wellness

Body Shaming + When Illness or Disability Affect Body Image, Fashion, and Beauty

Body-shaming is sadly a very real phenomenon. I mean, just look at the awesome and mega-fit Lady Gaga  (who I LOVE, by the way!) who was shamed and trolled over a practically-nonexistent “belly roll” during the Super Bowl.  It almost became a bigger topic of conversation than her stellar, iconic, and historically-great Super Bowl Halftime Show. … Continue reading

#Longread: The Emotions of Thinking and Talking About Illness
Advocacy / Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Autoimmune / Awareness / pain / Personal Stories / RA awareness / rheum awareness / rheumatoid arthritis awareness / SLE / Types of Arthritis / Uncategorized / Wellness

#Longread: The Emotions of Thinking and Talking About Illness

I’ve written and posted before about hiding our pain to spare the feelings of others, and many similar topics of conversation. I have also written about the emotions of guilt, resentment, and burden that can accompany a lifelong illness or disability. I decided to revisit the topic and reframe it in a couple of new ways. The first … Continue reading