To put it simply: being tired is NOT the same thing as having fatigue. The type of fatigue that comes along with chronic illness and autoimmune diseases is unlike any other kind of exhaustion that most healthy people will experience in their lives. As an “e-patient” and an online advocate for people with rheumatic and … Continue reading
Tag Archives: Chronic Illness
Difficult Decisions for Rheumatoid Arthritis Patients – by Ashley Boynes-Shuck
Being a rheumatoid arthritis patient or someone who lives with any chronic illness, really, leads us to sometimes have to make tough decisions that others may not have to face. Some of these decisions may be difficult or disheartening, and, like most life decisions, need to be considered carefully. One major decision that RA (and … Continue reading
Lupus for Christmas – by Ashley Boynes-Shuck
I got Lupus for Christmas. And Sjögrens Syndrome, too. They were wrapped up in a nice little package to go with my Rheumatoid Arthritis and Celiac Disease, and tied up with an imaginary bow. I didn’t get coal in my stocking, but I got the motherlode of autoimmune illness, delivered not by Santa, but by my … Continue reading
Redefining Success with Chronic Illness – by Ashley Boynes-Shuck
This will probably be one of the more honest blog posts that I’ve written to date. The other day, I felt sorry for myself. I didn’t feel well and I wanted to simply scream. I thought about things that I have given up or missed out on because of my illnesses and health problems, and … Continue reading
Neurological Involvement in Rheumatoid Arthritis and Lupus – by Ashley Boynes-Shuck
Did you know that autoimmune diseases such as rheumatoid arthritis and lupus, among others, carry with them the risk for neurological symptoms or comorbidities? It’s true. Sometimes these types of chronic illnesses can LITERALLY be in your head … and the rest of the body, too. Both Lupus and Rheumatoid (Autoimmune) Arthritis can have Neurological … Continue reading
A Modge-Podge of Arthritis News and Tidbits! – by Ashley Boynes-Shuck
Today has brought a lot of news and “tidbits” about arthritis and other forms of rheumatic disease. Some of it is brand-new, other news is older … but still worth sharing. Here are some recent stories to be made aware of, as of today … A CBS article reveals that running doesn’t always lead to, … Continue reading
What I Wish People Knew About My Chronic Illness – by Ashley Boynes-Shuck
There are many things that those of us who live with chronic illness have to contend with, and one of those things is the thoughts and opinions of others. While we should pay no mind to what others think of us, I, for one, would be lying if I said I didn’t worry about what … Continue reading
Getting the Support you Need Online – by Ashley Boynes-Shuck
There are many ways to use the Internet to find information about different types of arthritis. However, another added benefit to surfing the web is that you can find all kinds of helpful support groups and communities of people just like yourself who are dealing with arthritis, chronic pain, and/or rheumatic diseases. Facebook has a … Continue reading
What Story Does Your Face Tell? – by Ashley Boynes-Shuck
Arthritis Month has come to an end, but just because June is here, doesn’t mean we shouldn’t keep on spreading arthritis awareness. During the month of May, I saw and heard a lot from the Arthritis Foundation’s “Faces of Arthritis” campaign — a wonderful, and sometimes eye-opening, initiative. I thought long and hard about the Face of Arthritis, and … Continue reading
Autoimmune Illness and Circulation: How Do Conditions Like Rheumatoid Arthritis Affect Our Cardiovascular System? – By Ashley Boynes-Shuck
Most people think of aches and pains when they hear about arthritis, lupus, fibromyalgia, and similar ailments. The truth is, these conditions are complex, and there are still so many unknowns that surround each of them. Yes, pain and inflammation are often a huge part of various forms of arthritis and other chronic autoimmune illnesses, … Continue reading