#PatientsHavePower: The Gift of Breakthrough Research and Clinical Trials
Advocacy / Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Autoimmune / Awareness / chronic illness / Disability / Fibromyalgia / invisible illness / Juvenile Arthritis / Lupus / pain / Personal Stories / RA awareness / rheum awareness / rheumatoid arthritis awareness / SLE / social media / sponsored / Types of Arthritis / Uncategorized / Wellness

#PatientsHavePower: The Gift of Breakthrough Research and Clinical Trials

*Disclaimer: Before I begin, let’s get the requisite disclaimer out of the way: this piece has been entered in the Patients Have Power Writing Contest run by Clara Health. It is designed to raise awareness about clinical trials. That said, I’m nonetheless still passionate about this cause, and am personally interested in everything that this … Continue reading

Is it Juvenile Arthritis … or Farber Disease?
Advocacy / Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Autoimmune / Awareness / chronic illness / pain / rheum awareness / sponsored / Types of Arthritis / Uncategorized / Wellness

Is it Juvenile Arthritis … or Farber Disease?

It’s Arthritis Awareness Month (yay!) … so I want to bring awareness to a very rare disease that often mimics Juvenile Idiopathic Arthritis. This illness is called Farber Disease (a.k.a. Farber’s Disease, Farber’s┬álipogranulomatosis, ceramidase deficiency, Fibrocytic dysmucopolysaccharidosis, and Lipogranulomatosis.) Currently there are only 80 diagnosed, confirmed cases of Farber Disease worldwide! However, there may be … Continue reading