#PatientsHavePower: The Gift of Breakthrough Research and Clinical Trials
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#PatientsHavePower: The Gift of Breakthrough Research and Clinical Trials

*Disclaimer: Before I begin, let’s get the requisite disclaimer out of the way: this piece has been entered in the Patients Have Power Writing Contest run by Clara Health. It is designed to raise awareness about clinical trials. That said, I’m nonetheless still passionate about this cause, and am personally interested in everything that this … Continue reading

My Joints Are 90 Years Old, But That’s OK
Arthritis / Arthritis Ashley / Awareness / Body Image / chronic illness / Disability / invisible illness / Juvenile Arthritis / pain / Personal Stories / RA awareness / rheum awareness / rheumatoid arthritis awareness / Uncategorized / Wellness

My Joints Are 90 Years Old, But That’s OK

✨✨ Long post, but I promise it has a point. Please read to the end! (And please excuse typos.) ✨✨ In the past year, I have been told by orthopedic surgeons that my right knee looks like an 80-year-old’s. I was told that my right foot and ankle look like a 90-year-old. And yesterday, that my … Continue reading

Healthcare Should Be A Basic Human Right
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Healthcare Should Be A Basic Human Right

Today I was told that health insurance is unnecessary, that the doctor should just charge us for what we use. It should only be for catastrophes, not ongoing or recurring treatments. If someone is too sick to work, or elderly, or born into a poor family, “oh well,” they said — we are all born … Continue reading

Body Shaming + When Illness or Disability Affect Body Image, Fashion, and Beauty
Arthritis Ashley / Body Image / book / chronic illness / Disability / Entertainment / Journey to Wellness / Juvenile Arthritis / Lady Gaga / Lupus / pain / Personal Stories / Pop Culture / RA awareness / rheum awareness / rheumatoid arthritis awareness / Types of Arthritis / Uncategorized / Wellness

Body Shaming + When Illness or Disability Affect Body Image, Fashion, and Beauty

Body-shaming is sadly a very real phenomenon. I mean, just look at the awesome and mega-fit Lady Gaga  (who I LOVE, by the way!) who was shamed and trolled over a practically-nonexistent “belly roll” during the Super Bowl.  It almost became a bigger topic of conversation than her stellar, iconic, and historically-great Super Bowl Halftime Show. … Continue reading

#Longread: The Emotions of Thinking and Talking About Illness
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#Longread: The Emotions of Thinking and Talking About Illness

I’ve written and posted before about hiding our pain to spare the feelings of others, and many similar topics of conversation. I have also written about the emotions of guilt, resentment, and burden that can accompany a lifelong illness or disability. I decided to revisit the topic and reframe it in a couple of new ways. The first … Continue reading

All About the Autoimmune Registry
Advocacy / Arthritis Ashley / Autoimmune / Awareness / healthline / Juvenile Arthritis / Lupus / Types of Arthritis / Uncategorized / Wellness

All About the Autoimmune Registry

Guys, I’m really excited to be working with a great new 501c3 nonprofit called The Autoimmune Registry. We are in the process of  creating a hub for research, statistics, and patient data on all autoimmune illnesses. We also aim to establish prevalence of these disease, as right now the estimates for autoimmune disease prevalence are all … Continue reading

Karma and Illness: That’s a Nope
Advocacy / Arthritis Ashley / arthritis blog / Autoimmune / Awareness / chronic illness / Entertainment / invisible illness / pain / Pop Culture / RA awareness / Uncategorized

Karma and Illness: That’s a Nope

I don’t go so far as to reject many ideas. Truly. I’m like a sponge: I soak up as much information as I can and try to equally and fairly weigh all points of view and perspectives. I like to try to learn about things without judging them. Even if I disagree with something, I … Continue reading