#PatientsHavePower: The Gift of Breakthrough Research and Clinical Trials

Posted on June 8, 2018 by Arthritis Ashley • Leave a comment

*Disclaimer: Before I begin, let’s get the requisite disclaimer out of the way: this piece has been entered in the Patients Have Power Writing Contest run by Clara Health. It is designed to raise awareness about clinical trials. That said, I’m nonetheless still passionate about this cause, and am personally interested in everything that this … Continue reading →

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My Joints Are 90 Years Old, But That’s OK

Posted on August 1, 2017 by Arthritis Ashley • 2 Comments

✨✨ Long post, but I promise it has a point. Please read to the end! (And please excuse typos.) ✨✨ In the past year, I have been told by orthopedic surgeons that my right knee looks like an 80-year-old’s. I was told that my right foot and ankle look like a 90-year-old. And yesterday, that my … Continue reading →

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Healthcare Should Be A Basic Human Right

Posted on July 20, 2017 by Arthritis Ashley • 1 Comment

Today I was told that health insurance is unnecessary, that the doctor should just charge us for what we use. It should only be for catastrophes, not ongoing or recurring treatments. If someone is too sick to work, or elderly, or born into a poor family, “oh well,” they said — we are all born … Continue reading →

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Body Shaming + When Illness or Disability Affect Body Image, Fashion, and Beauty

Posted on February 8, 2017 by Arthritis Ashley • 1 Comment

Body-shaming is sadly a very real phenomenon. I mean, just look at the awesome and mega-fit Lady Gaga (who I LOVE, by the way!) who was shamed and trolled over a practically-nonexistent “belly roll” during the Super Bowl. It almost became a bigger topic of conversation than her stellar, iconic, and historically-great Super Bowl Halftime Show. … Continue reading →

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#Longread: The Emotions of Thinking and Talking About Illness

Posted on January 19, 2017 by Arthritis Ashley • 1 Comment

I’ve written and posted before about hiding our pain to spare the feelings of others, and many similar topics of conversation. I have also written about the emotions of guilt, resentment, and burden that can accompany a lifelong illness or disability. I decided to revisit the topic and reframe it in a couple of new ways. The first … Continue reading →

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All About the Autoimmune Registry

Posted on January 13, 2017 by Arthritis Ashley • Leave a comment

Guys, I’m really excited to be working with a great new 501c3 nonprofit called The Autoimmune Registry. We are in the process of creating a hub for research, statistics, and patient data on all autoimmune illnesses. We also aim to establish prevalence of these disease, as right now the estimates for autoimmune disease prevalence are all … Continue reading →

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Karma and Illness: That’s a Nope

Posted on January 13, 2017 by Arthritis Ashley • 2 Comments

I don’t go so far as to reject many ideas. Truly. I’m like a sponge: I soak up as much information as I can and try to equally and fairly weigh all points of view and perspectives. I like to try to learn about things without judging them. Even if I disagree with something, I … Continue reading →