There was a song that was popular when I was in high school called “What’s My Age Again?” by Blink 182. I’ve always related to that question: what IS my age? It’s mostly because of my rheumatoid arthritis. First off, there’s always been an issue with my actual diagnosis: yes, it WAS “juvenile” rheumatoid arthritis, … Continue reading
Tag Archives: Life
My Joints Are 90 Years Old, But That’s OK
✨✨ Long post, but I promise it has a point. Please read to the end! (And please excuse typos.) ✨✨ In the past year, I have been told by orthopedic surgeons that my right knee looks like an 80-year-old’s. I was told that my right foot and ankle look like a 90-year-old. And yesterday, that my … Continue reading
#Longread: LEMONADE: Who Would I Be Without My Lemons?
“Oh, stars in her eyes, She fights and she sweats those sleepless nights, But she don’t mind, she loves the grind, She grinds from Monday to Friday, Works from Friday to Sunday…” – ‘6-Inch,’ Beyoncé, Lemonade. Beyonce and Lemonade The above quote is from a song off of Beyoncé’s album, Lemonade. You see, the Grammy Awards are tonight. Grammys … Continue reading
#Longread: The Emotions of Thinking and Talking About Illness
I’ve written and posted before about hiding our pain to spare the feelings of others, and many similar topics of conversation. I have also written about the emotions of guilt, resentment, and burden that can accompany a lifelong illness or disability. I decided to revisit the topic and reframe it in a couple of new ways. The first … Continue reading
Breaking: Sick Girl is Sick of Absolutes and Assumptions
We live in a society where people think that if you’re for one thing, you’re against another. It’s also a world in which people think that by discussing your own journey, you are somehow dismissing theirs. We are divided on many issues, we still think in cliches, and we still see in stereotypes. But we act … Continue reading
#HAWMC – Day 10: An RA Q&A
Questions and answers about life with rheumatoid arthritis and invisible illness. Continue reading
Finding Faith During Times of Chaos
I’ve learned something: Illness turns many people away from God. Suffering makes many question their faith. However, these times of chaos and seemingly “ungodly” pain causes others to go the opposite direction, running towards God and embracing their faith with arms wide open. Of course, there are those of you who are agnostics and atheists, … Continue reading
Rant Time: Don’t “Quantify” the Sick Girl
You know how it’s rude to say things like, “you throw okay … for a girl.” Or, “you run pretty fast … for being so big.” It’s also somewhat insulting to say things like, “wow! You’ve accomplished so much … despite being sick.” No, I haven’t accomplished a lot “for being a sick girl.” I’ve … Continue reading
How Much Do Our Emotions and Life Decisions Contribute to Our Disease Symptoms?
I read a really interesting piece recently about some symptoms of chronic illnesses being, not caused by, but, exacerbated by, one’s life being out-of-balance or on the wrong path i.e. wrong career, wrong spouse or romantic partner, no spiritual compass, minimal friends or social prospects, little community involvement, too much focus on the self or … Continue reading
Managing Time with Chronic Illness – by Ashley Boynes-Shuck
Sometimes, it’s hard to find time for things you want and need to do, while living with chronic illness. I get it. It’s difficult, and it’s even harder to explain to others. It’s been described in terms of spoons, and in many other ways, ranging from the creative to the absurd. That said, time management … Continue reading