There was a song that was popular when I was in high school called “What’s My Age Again?” by Blink 182. I’ve always related to that question: what IS my age? It’s mostly because of my rheumatoid arthritis. First off, there’s always been an issue with my actual diagnosis: yes, it WAS “juvenile” rheumatoid arthritis, … Continue reading
Tag Archives: patient advocate
#RealTalkRA Summit: Pharma, Fun, and Friends
This week, I was invited by Pfizer to attend the 2017 Real Talk Summit in New York City. While they did compensate me for my time and took care of accommodations, I’m going to go ahead and disclaim now that they are NOT paying me for this blog post, and did NOT ask *or* … Continue reading
Breaking: Sick Girl is Sick of Absolutes and Assumptions
We live in a society where people think that if you’re for one thing, you’re against another. It’s also a world in which people think that by discussing your own journey, you are somehow dismissing theirs. We are divided on many issues, we still think in cliches, and we still see in stereotypes. But we act … Continue reading
#HAWMC – Day 10: An RA Q&A
Questions and answers about life with rheumatoid arthritis and invisible illness. Continue reading
Arthritis Ashley Tells The Mighty Why She’s Happy Despite Living with Illness
Our very own Arthritis Ashley was featured on the website, “The Mighty” this week. The Mighty celebrates “the superheroes among us,” who are staying strong and triumphing despite life’s many hardships ranging from chronic illness, to disability, and more. Like us, their mission is to educate and spread awareness about various health issues. You can read … Continue reading
Arthritis and Chronic Illness: Stripping Away Labels and Stigma – by Ashley Boynes-Shuck
When I was in graduate school, I took one psychology course that was oriented towards special education. One important thing that I took away from it was that we should always use, “people-first” language. At the time, I only thought of it in the realm of dealing with children with special needs, but, now, I … Continue reading
An “Arthritis Ashley” Update: Marriage, Lupus, and Loving Life! – Ashley’s Health Diary – Entry #29 – by Ashley Boynes-Shuck
July 15, 2011 It has been a while since I’ve written in my online “Health Diary” and updated you all on my health progress and how I’ve been, and so I figured that I am well overdue! First off, I’m now a Mrs! I got married to the love of my life, Mike, on the … Continue reading
Some Anecdotes & Some Silver Lining: Stories of arthritic hands, Lady Gaga, and advocating for yourself and your health! ~ Ashley’s Health Diary, Entry #26
Entry #26 – December 3rd, 2010 I’ve got a few interesting antecdotes to share in this entry, and so I’ll split it up into a few separate stories, if you all don’t mind! First let me tell you about my hands. (Bear with me here!) In a previous post, I bemoaned my “ugly hands” and … Continue reading