#PatientsHavePower: The Gift of Breakthrough Research and Clinical Trials

Posted on June 8, 2018 by Arthritis Ashley • Leave a comment

*Disclaimer: Before I begin, let’s get the requisite disclaimer out of the way: this piece has been entered in the Patients Have Power Writing Contest run by Clara Health. It is designed to raise awareness about clinical trials. That said, I’m nonetheless still passionate about this cause, and am personally interested in everything that this … Continue reading →

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TheRAconnection.com — Join Today!

Posted on May 10, 2018 by Arthritis Ashley • Leave a comment

I’ve recently began blogging with The RA Connection, as well as doing some admin and community management work with this wonderful site. I urge you all to join if you have RA, PsA, OA, Lupus, or AS. It is free, safe, secure, and easy to use — a great place for Community, Content, and Connection … Continue reading →

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Feeling Adult-ish After My Total Knee Replacement

Posted on October 26, 2017 by Arthritis Ashley • Leave a comment

There was a song that was popular when I was in high school called “What’s My Age Again?” by Blink 182. I’ve always related to that question: what IS my age? It’s mostly because of my rheumatoid arthritis. First off, there’s always been an issue with my actual diagnosis: yes, it WAS “juvenile” rheumatoid arthritis, … Continue reading →

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My Joints Are 90 Years Old, But That’s OK

Posted on August 1, 2017 by Arthritis Ashley • 2 Comments

✨✨ Long post, but I promise it has a point. Please read to the end! (And please excuse typos.) ✨✨ In the past year, I have been told by orthopedic surgeons that my right knee looks like an 80-year-old’s. I was told that my right foot and ankle look like a 90-year-old. And yesterday, that my … Continue reading →

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Doing What We Can

Posted on April 22, 2017 by Arthritis Ashley • 1 Comment

Something I’ve struggled with during my decades of illness is what I WANT to do, versus what I CAN do. I’m learning to accept that I can only do what I can. Some days, like last weekend, it is hiking up over 500 steps on the side of a mountain. Some days, like yesterday, it … Continue reading →

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No, Lady Gaga Did NOT Confirm That She Has Rheumatoid Arthritis

Posted on April 2, 2017 by Arthritis Ashley • 5 Comments

A post has gone viral in recent days, feverishly declaring that “Lady Gaga Has RA!” “Lady Gaga Reveals She Has Rheumatoid Arthritis” and “Pop Star Lady Gaga Opens Up About Life With Rheumatoid Arthritis.” Except … she never specifically revealed that she has it. I admit that I was guilty of initially, (hesitantly) sharing it with a … Continue reading →

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#Longread: The Emotions of Thinking and Talking About Illness

Posted on January 19, 2017 by Arthritis Ashley • 1 Comment

I’ve written and posted before about hiding our pain to spare the feelings of others, and many similar topics of conversation. I have also written about the emotions of guilt, resentment, and burden that can accompany a lifelong illness or disability. I decided to revisit the topic and reframe it in a couple of new ways. The first … Continue reading →

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#HAWMC – Day 10: An RA Q&A

Posted on November 10, 2016 by Arthritis Ashley • Leave a comment

Questions and answers about life with rheumatoid arthritis and invisible illness. Continue reading →

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When RA Tries to Get in the Way (But I Won’t Let It)

Posted on July 13, 2016 by Arthritis Ashley • 1 Comment

I set off for this summer to be my “summer of hobbies.” My summer even has its own Instagram hashtag, #AshSummerOfHobbies2016! But, I didn’t anticipate RA to get in the way. (This is something I discussed in a recent Arthritis Ashley Facebook Live Chat.) I’m very proud of myself for pushing through, though. RA and … Continue reading →

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The Great JA vs. RA Debacle

Posted on July 7, 2016 by Arthritis Ashley • 1 Comment

This is a Facebook-rant-turned-blog post. I am definitely looking for some feedback/insight on this one, because when it comes to The Great JA vs. RA Debacle, I don’t know what is considered to be the standard, or what is the “proper” and acceptable approach. Even whilst doing research, I seem to encounter different answers on … Continue reading →