#PatientsHavePower: The Gift of Breakthrough Research and Clinical Trials
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#PatientsHavePower: The Gift of Breakthrough Research and Clinical Trials

*Disclaimer: Before I begin, let’s get the requisite disclaimer out of the way: this piece has been entered in the Patients Have Power Writing Contest run by Clara Health. It is designed to raise awareness about clinical trials. That said, I’m nonetheless still passionate about this cause, and am personally interested in everything that this … Continue reading

TheRAconnection.com — Join Today!
Advocacy / Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Autoimmune / chronic illness / Disability / Personal Stories / RA awareness / rheum awareness / rheumatoid arthritis awareness / sponsored / Types of Arthritis / Uncategorized / Wellness

TheRAconnection.com — Join Today!

I’ve recently began blogging with The RA Connection, as well as doing some admin and community management work with this wonderful site. I urge you all to join if you have RA, PsA, OA, Lupus, or AS. It is free, safe, secure, and easy to use — a great place for Community, Content, and Connection … Continue reading

Feeling Adult-ish After My Total Knee Replacement
Advocacy / Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Ashley's Health Diary / Autoimmune / Awareness / Body Image / chronic illness / Disability / Entertainment / invisible illness / Juvenile Arthritis / pain / Personal Stories / Pop Culture / RA awareness / rheum awareness / rheumatoid arthritis awareness / selfies / social media / Types of Arthritis / Uncategorized / Wellness

Feeling Adult-ish After My Total Knee Replacement

There was a song that was popular when I was in high school called “What’s My Age Again?” by Blink 182. I’ve always related to that question: what IS my age? It’s mostly because of my rheumatoid arthritis. First off, there’s always been an issue with my actual diagnosis: yes, it WAS “juvenile” rheumatoid arthritis, … Continue reading

My Joints Are 90 Years Old, But That’s OK
Arthritis / Arthritis Ashley / Awareness / Body Image / chronic illness / Disability / invisible illness / Juvenile Arthritis / pain / Personal Stories / RA awareness / rheum awareness / rheumatoid arthritis awareness / Uncategorized / Wellness

My Joints Are 90 Years Old, But That’s OK

✨✨ Long post, but I promise it has a point. Please read to the end! (And please excuse typos.) ✨✨ In the past year, I have been told by orthopedic surgeons that my right knee looks like an 80-year-old’s. I was told that my right foot and ankle look like a 90-year-old. And yesterday, that my … Continue reading

Doing What We Can
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Doing What We Can

Something I’ve struggled with during my decades of illness is what I WANT to do, versus what I CAN do. I’m learning to accept that I can only do what I can. Some days, like last weekend, it is hiking up over 500 steps on the side of a mountain. Some days, like yesterday, it … Continue reading

No, Lady Gaga Did NOT Confirm That She Has Rheumatoid Arthritis
Advocacy / Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Arthritis Foundation / Autoimmune / Awareness / Body Image / chronic illness / Disability / Entertainment / healthline / invisible illness / Juvenile Arthritis / Lady Gaga / Lupus / pain / Personal Stories / Pop Culture / RA awareness / rheum awareness / rheumatoid arthritis awareness / Selena Gomez / SLE / social media / Types of Arthritis / Uncategorized / Wellness

No, Lady Gaga Did NOT Confirm That She Has Rheumatoid Arthritis

A post has gone viral in recent days, feverishly declaring that “Lady Gaga Has RA!” “Lady Gaga Reveals She Has Rheumatoid Arthritis” and “Pop Star Lady Gaga Opens Up About Life With Rheumatoid Arthritis.” Except … she never specifically revealed that she has it.  I admit that I was guilty of initially, (hesitantly) sharing it with a … Continue reading

#Longread: The Emotions of Thinking and Talking About Illness
Advocacy / Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Autoimmune / Awareness / pain / Personal Stories / RA awareness / rheum awareness / rheumatoid arthritis awareness / SLE / Types of Arthritis / Uncategorized / Wellness

#Longread: The Emotions of Thinking and Talking About Illness

I’ve written and posted before about hiding our pain to spare the feelings of others, and many similar topics of conversation. I have also written about the emotions of guilt, resentment, and burden that can accompany a lifelong illness or disability. I decided to revisit the topic and reframe it in a couple of new ways. The first … Continue reading