Tag Archives: Spoonie

Advocacy / Arthritis / Arthritis Foundation / Ashley's Health Diary / Awareness / Fibromyalgia / Juvenile Arthritis / Types of Arthritis / Uncategorized / Wellness

Check out Track + React: A New Online Interactive Arthritis Self-Management Tool – by Ashley Boynes

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The Arthritis Foundation is striving to help cultivate an interactive online arthritis nation to help people live better with arthritis. In doing so, they’ve created an awesome new interactive online tool called Track + React – and the best part is, it’s FREE! People with any form of arthritis or rheumatic disease can log on … Continue reading →

Advocacy / Arthritis / Arthritis Foundation / Awareness / Fibromyalgia / Juvenile Arthritis / Personal Stories / Types of Arthritis / Uncategorized / Wellness

Yoga and Arthritis – Some Facts and Some Testimonies – by Ashley Boynes

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I have taken traditional yoga classes, read up on chair yoga, and am about to embark upon the adventure of bikram hot yoga, and so I wanted to first do some research and find out how beneficial yoga really is for arthritis. Of course, the first step for me  – and for any of you … Continue reading →

Advocacy / Arthritis / Arthritis Foundation / Ashley's Health Diary / Awareness / Fibromyalgia / Juvenile Arthritis / Personal Stories / Types of Arthritis / Uncategorized / Wellness

In a Perfect World – A Life Without Illness: What Would You Do? – by Ashley Boynes

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 Today there was a “trending topic” on Twitter that simply said, “Serious Question” and provoked users to ask their followers a serious question to answer. I thought about what I’d like to hear from my “tweeps” – especially those who are chronically ill or disabled – and the question I decided to pose was, “We … Continue reading →

Advocacy / Arthritis / Ashley's Health Diary / Awareness / Juvenile Arthritis / Personal Stories / Types of Arthritis / Uncategorized / Wellness

Autoimmune Overlap Syndrome – Yes, There IS Such a Thing! – by Ashley Boynes

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I recently was told that I have “autoimmune overlap syndrome.”  This is exactly what it sounds like. Whereas most people have 1 or 2 autoimmune conditions, I, like many other “spoonies” out there, have been dealt a whole slew of them. Basically, what this is, is when you have one “primary” condition and a few … Continue reading →

Arthritis / Awareness / Personal Stories / Types of Arthritis / Wellness

Drug-Induced Lupus – What Is It, and Who Can Get It? – by Ashley Boynes

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Recently, I was told that I likely have a form of lupus called “drug induced lupus” or DIL for short. If you had asked me a couple of months ago, I would have had no idea that this existed – but it unfortunately does. I knew about discoid lupus, which mostly affects the skin, and … Continue reading →

Advocacy / Arthritis / Arthritis Foundation / Awareness / Juvenile Arthritis / Uncategorized / Wellness

The Very Merry Month of May: Arthritis & Lupus Awareness – by Ashley Boynes

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May is both Arthritis Awareness and Lupus Awareness Month in the United States. Let’s take advantage of this fact in order to spread the word and to educate others about these conditions. Stumped on how to spread awareness? Increasing education and visibility are key. By improving upon these areas, we can further spread awareness, which … Continue reading →

Advocacy / Arthritis / Arthritis Foundation / Awareness / Juvenile Arthritis / Uncategorized / Wellness

What’s In a Name? Distinguishing Rheumatoid Arthritis from Osteoarthritis

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 What’s in a name? A rose by any other name would smell as sweet, right? But, sometimes, what certain things, situations, or ailments are called can lead to confusion. I recently heard of someone naming their pet cat, “Dog.” Funny, but confusing. So is the term, “rheumatoid arthritis.” The word arthritis (literally meaning, “joint inflammation) … Continue reading →

Advocacy / Arthritis / Arthritis Foundation / Ashley's Health Diary / Awareness / Juvenile Arthritis / Personal Stories / Uncategorized / Wellness

“What I Know For Sure” – Chronic Illness Edition … by Ashley Boynes – inspired by Oprah Winfrey

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Oprah has taught me a lot of things. She’s one of my idols, and, to me, a prime example of “overcoming” in the face of adversity to truly live your life to its fullest potential. After writing in since high school (I graduated in 2002) and being on a ticket waiting list for over 2 … Continue reading →

Advocacy / Arthritis / Arthritis Foundation / Awareness / Juvenile Arthritis / Uncategorized

Are You Prepared for an Emergency? – by Ashley Boynes

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Reflecting on the recent disaster in Japan – and past natural disasters around the world – I wonder how many of us are actually prepared for an emergency. Those of us with medical needs may have to take some extra precautions and may also have more to take into consideration. How ready are YOU for … Continue reading →

Advocacy / Arthritis / Arthritis Foundation / Awareness / Juvenile Arthritis / Uncategorized

Why Advocate? – Ashley Boynes

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Why advocate? You’re just one voice, after all. You won’t be heard. … or will you? Arthritis affects 22% of the United States population. That’s over 50 million adults and over 300,000 children. Still thinking you won’t be heard? Think again. Last week was the Advocacy Summit. Arthritis patients and advocates of all ages stormed … Continue reading →