#PatientsHavePower: The Gift of Breakthrough Research and Clinical Trials
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#PatientsHavePower: The Gift of Breakthrough Research and Clinical Trials

*Disclaimer: Before I begin, let’s get the requisite disclaimer out of the way: this piece has been entered in the Patients Have Power Writing Contest run by Clara Health. It is designed to raise awareness about clinical trials. That said, I’m nonetheless still passionate about this cause, and am personally interested in everything that this … Continue reading

How RA Impacts Relationships and Self-Love: A Pfizer Facebook Live Chat with Arthritis Ashley & Dr. Logan Levkoff
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How RA Impacts Relationships and Self-Love: A Pfizer Facebook Live Chat with Arthritis Ashley & Dr. Logan Levkoff

Thank you to Pfizer for having Dr. Logan Levkoff and me on to discuss Relationships & Rheumatoid Arthritis. Filmed live at Pfizer Studios in New York City, we discussed how RA can affect relationships with our partners, our families, and, even our relationship with our selves. Check out the video on the Pfizer Facebook page, … Continue reading

Feeling Adult-ish After My Total Knee Replacement
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Feeling Adult-ish After My Total Knee Replacement

There was a song that was popular when I was in high school called “What’s My Age Again?” by Blink 182. I’ve always related to that question: what IS my age? It’s mostly because of my rheumatoid arthritis. First off, there’s always been an issue with my actual diagnosis: yes, it WAS “juvenile” rheumatoid arthritis, … Continue reading

Your Story Counts: Help Further Autoimmune Disease Research Today
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Your Story Counts: Help Further Autoimmune Disease Research Today

Autoimmune diseases can be serious, and the following video includes just some of the faces of the millions of people who live with these often-invisible illnesses. Today is #WorldArthritisDay. I personally live with just one of many autoimmune forms of arthritis. But did you know that arthritis, and joint & muscle pain, are also common … Continue reading

When Stars Get Sick: Glamorizing Illness or Bringing Awareness?
Advocacy / Arthritis Ashley / Autoimmune / Awareness / Body Image / chronic illness / Entertainment / invisible illness / Lady Gaga / Lupus / Personal Stories / Pop Culture / rheum awareness / Selena Gomez / social media / Types of Arthritis / Uncategorized / Wellness

When Stars Get Sick: Glamorizing Illness or Bringing Awareness?

It never fails to amaze me how fired up people on the Internet get about celebrities. Like, okay … I’ve been guilty of it to an extent. I’m an admitted fangirl. I’m proudly in the “fandoms” of Britney Spears, Lady Gaga, Justin Timberlake, Taylor Swift, Beyonce, Ed Sheeran, and Oprah. I’m a Grey’s Anatomy lifer. … Continue reading

“What RA Looks Like” – by Healthline
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“What RA Looks Like” – by Healthline

What Rheumatoid Arthritis Looks Like In August, Healthline.com sent a film crew to my home in Pittsburgh. They followed me around for 8 hours to see what a typical day is like for me as a patient with RA. (Of course, we all know that there is no “typical” day. That day, I was able … Continue reading

My Joints Are 90 Years Old, But That’s OK
Arthritis / Arthritis Ashley / Awareness / Body Image / chronic illness / Disability / invisible illness / Juvenile Arthritis / pain / Personal Stories / RA awareness / rheum awareness / rheumatoid arthritis awareness / Uncategorized / Wellness

My Joints Are 90 Years Old, But That’s OK

✨✨ Long post, but I promise it has a point. Please read to the end! (And please excuse typos.) ✨✨ In the past year, I have been told by orthopedic surgeons that my right knee looks like an 80-year-old’s. I was told that my right foot and ankle look like a 90-year-old. And yesterday, that my … Continue reading

Doing What We Can
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Doing What We Can

Something I’ve struggled with during my decades of illness is what I WANT to do, versus what I CAN do. I’m learning to accept that I can only do what I can. Some days, like last weekend, it is hiking up over 500 steps on the side of a mountain. Some days, like yesterday, it … Continue reading

No, Lady Gaga Did NOT Confirm That She Has Rheumatoid Arthritis
Advocacy / Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Arthritis Foundation / Autoimmune / Awareness / Body Image / chronic illness / Disability / Entertainment / healthline / invisible illness / Juvenile Arthritis / Lady Gaga / Lupus / pain / Personal Stories / Pop Culture / RA awareness / rheum awareness / rheumatoid arthritis awareness / Selena Gomez / SLE / social media / Types of Arthritis / Uncategorized / Wellness

No, Lady Gaga Did NOT Confirm That She Has Rheumatoid Arthritis

A post has gone viral in recent days, feverishly declaring that “Lady Gaga Has RA!” “Lady Gaga Reveals She Has Rheumatoid Arthritis” and “Pop Star Lady Gaga Opens Up About Life With Rheumatoid Arthritis.” Except … she never specifically revealed that she has it.  I admit that I was guilty of initially, (hesitantly) sharing it with a … Continue reading

#Longread: LEMONADE: Who Would I Be Without My Lemons?
Advocacy / Arthritis / Arthritis Ashley / arthritis awareness / arthritis blog / Arthritis Foundation / Ashley's Health Diary / Autoimmune / Awareness / Body Image / chronic illness / Disability / Entertainment / giveaway / invisible illness / Lupus / pain / Personal Stories / Pop Culture / RA awareness / rheum awareness / rheumatoid arthritis awareness / social media / Types of Arthritis / Uncategorized

#Longread: LEMONADE: Who Would I Be Without My Lemons?

“Oh, stars in her eyes, She fights and she sweats those sleepless nights, But she don’t mind, she loves the grind, She grinds from Monday to Friday, Works from Friday to Sunday…” – ‘6-Inch,’ Beyoncé, Lemonade. Beyonce and Lemonade The above quote is from a song off of Beyoncé’s album, Lemonade. You see, the Grammy Awards are tonight. Grammys … Continue reading