There was a song that was popular when I was in high school called “What’s My Age Again?” by Blink 182. I’ve always related to that question: what IS my age? It’s mostly because of my rheumatoid arthritis. First off, there’s always been an issue with my actual diagnosis: yes, it WAS “juvenile” rheumatoid arthritis, … Continue reading
Tag Archives: personal story
Your Story Counts: Help Further Autoimmune Disease Research Today
Autoimmune diseases can be serious, and the following video includes just some of the faces of the millions of people who live with these often-invisible illnesses. Today is #WorldArthritisDay. I personally live with just one of many autoimmune forms of arthritis. But did you know that arthritis, and joint & muscle pain, are also common … Continue reading
When Stars Get Sick: Glamorizing Illness or Bringing Awareness?
It never fails to amaze me how fired up people on the Internet get about celebrities. Like, okay … I’ve been guilty of it to an extent. I’m an admitted fangirl. I’m proudly in the “fandoms” of Britney Spears, Lady Gaga, Justin Timberlake, Taylor Swift, Beyonce, Ed Sheeran, and Oprah. I’m a Grey’s Anatomy lifer. … Continue reading
“What RA Looks Like” – by Healthline
What Rheumatoid Arthritis Looks Like In August, Healthline.com sent a film crew to my home in Pittsburgh. They followed me around for 8 hours to see what a typical day is like for me as a patient with RA. (Of course, we all know that there is no “typical” day. That day, I was able … Continue reading
Chronicles of a Sick Girl: A Rant on Feeling Conflicted and Judged
Here’s a little rant; maybe some of you can relate. Sometimes, I feel conflicted. I want people to know about the illnesses that I live with. I want to inform, inspire, advocate, and educate. I want to spread awareness. I want people to empathize or understand what I’m going through. I want people to “get … Continue reading
An “Ashley’s Health Diary” Update – Entry #30 – Wrapping Up 2011 and Looking Ahead to 2012 – by Ashley Boynes-Shuck
January 3rd, 2012 – I have not done one of my more personal Ashley’s Health Diary posts in a while, because I realized that it was more important for me to educate about rheumatic conditions than to talk about my own story. However, I do realize that as a patient advocate, that sharing my story … Continue reading
In a Perfect World – A Life Without Illness: What Would You Do? – by Ashley Boynes
Today there was a “trending topic” on Twitter that simply said, “Serious Question” and provoked users to ask their followers a serious question to answer. I thought about what I’d like to hear from my “tweeps” – especially those who are chronically ill or disabled – and the question I decided to pose was, “We … Continue reading
“What I Know For Sure” – Chronic Illness Edition … by Ashley Boynes – inspired by Oprah Winfrey
Oprah has taught me a lot of things. She’s one of my idols, and, to me, a prime example of “overcoming” in the face of adversity to truly live your life to its fullest potential. After writing in since high school (I graduated in 2002) and being on a ticket waiting list for over 2 … Continue reading
Some Anecdotes & Some Silver Lining: Stories of arthritic hands, Lady Gaga, and advocating for yourself and your health! ~ Ashley’s Health Diary, Entry #26
Entry #26 – December 3rd, 2010 I’ve got a few interesting antecdotes to share in this entry, and so I’ll split it up into a few separate stories, if you all don’t mind! First let me tell you about my hands. (Bear with me here!) In a previous post, I bemoaned my “ugly hands” and … Continue reading
Dr. Elizabeth Lombardo: Telling Arthritis Patients to be a “Happy You” in Spite of Chronic Pain – by Ashley Boynes
When I had the opportunity to have a conversation with the renowned Dr. Elizabeth Lombardo, I knew that I was in for a treat. Dr. Lombardo, who is a clinical psychologist AND physical therapist, helps patients to “enjoy less stress & more happiness, regardless of what else is going on in your life.” She specializes … Continue reading