Feeling Adult-ish After My Total Knee Replacement
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Feeling Adult-ish After My Total Knee Replacement

There was a song that was popular when I was in high school called “What’s My Age Again?” by Blink 182. I’ve always related to that question: what IS my age? It’s mostly because of my rheumatoid arthritis. First off, there’s always been an issue with my actual diagnosis: yes, it WAS “juvenile” rheumatoid arthritis, … Continue reading

Your Story Counts: Help Further Autoimmune Disease Research Today
Advocacy / Arthritis / Arthritis Ashley / Autoimmune / Awareness / invisible illness / Lupus / pain / Personal Stories / RA awareness / rheum awareness / rheumatoid arthritis awareness / SLE / Types of Arthritis / Uncategorized

Your Story Counts: Help Further Autoimmune Disease Research Today

Autoimmune diseases can be serious, and the following video includes just some of the faces of the millions of people who live with these often-invisible illnesses. Today is #WorldArthritisDay. I personally live with just one of many autoimmune forms of arthritis. But did you know that arthritis, and joint & muscle pain, are also common … Continue reading

When Stars Get Sick: Glamorizing Illness or Bringing Awareness?
Advocacy / Arthritis Ashley / Autoimmune / Awareness / Body Image / chronic illness / Entertainment / invisible illness / Lady Gaga / Lupus / Personal Stories / Pop Culture / rheum awareness / Selena Gomez / social media / Types of Arthritis / Uncategorized / Wellness

When Stars Get Sick: Glamorizing Illness or Bringing Awareness?

It never fails to amaze me how fired up people on the Internet get about celebrities. Like, okay … I’ve been guilty of it to an extent. I’m an admitted fangirl. I’m proudly in the “fandoms” of Britney Spears, Lady Gaga, Justin Timberlake, Taylor Swift, Beyonce, Ed Sheeran, and Oprah. I’m a Grey’s Anatomy lifer. … Continue reading

“What RA Looks Like” – by Healthline
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“What RA Looks Like” – by Healthline

What Rheumatoid Arthritis Looks Like In August, Healthline.com sent a film crew to my home in Pittsburgh. They followed me around for 8 hours to see what a typical day is like for me as a patient with RA. (Of course, we all know that there is no “typical” day. That day, I was able … Continue reading

Chronicles of a Sick Girl: A Rant on Feeling Conflicted and Judged
Arthritis / Arthritis Ashley / arthritis blog

Chronicles of a Sick Girl: A Rant on Feeling Conflicted and Judged

Here’s a little rant; maybe some of you can relate. Sometimes, I feel conflicted. I want people to know about the illnesses that I live with. I want to inform, inspire, advocate, and educate. I want to spread awareness. I want people to empathize or understand what I’m going through. I want people to “get … Continue reading

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An “Ashley’s Health Diary” Update – Entry #30 – Wrapping Up 2011 and Looking Ahead to 2012 – by Ashley Boynes-Shuck

January 3rd, 2012 – I have not done one of my more personal Ashley’s Health Diary posts in a while, because I realized that it was more important for me to educate about rheumatic conditions than to talk about my own story. However, I do realize that as a patient advocate, that sharing my story … Continue reading

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In a Perfect World – A Life Without Illness: What Would You Do? – by Ashley Boynes

 Today there was a “trending topic” on Twitter that simply said, “Serious Question” and provoked users to ask their followers a serious question to answer. I thought about what I’d like to hear from my “tweeps” – especially those who are chronically ill or disabled – and the question I decided to pose was, “We … Continue reading